The Support Needs Approach for Patients (SNAP): Content validity and response processes from the perspective of patients and nurses in Swedish specialised palliative home care

Lundh Hagelin, Carina, Holm, Maja, Axelsson, Lena, Rosén, Marjukka, Norell, Terés, Suárez Godoy, Zilmara, Farquhar, Morag, Ewing, Gail, Gardener, Carole, Årestedt, Kristofer and Alvariza, Anette (2025) The Support Needs Approach for Patients (SNAP): Content validity and response processes from the perspective of patients and nurses in Swedish specialised palliative home care. BMC Palliative Care, 24. ISSN 1472-684X

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Abstract

Background: The Support Needs Approach for Patients (SNAP) enables patients to reflect on, identify and prioritise their own support needs from a holistic perspective and enable tailored support. Therefore, the aim of this study was to examine the content validity and response processes for the Swedish version of the SNAP Tool among patients with life-threatening illness and palliative care needs, and registered nurses (RN) in specialized palliative home care services. Methods: This was a two-stage validation study: (I) translation of the original English version of the SNAP Tool into Swedish, and (II) examination of content validity for patients and RNs in specialized palliative home care, and response processes among the patients. Cognitive interviews were conducted with patients (n=11) and focus groups with RNs (n=10). Data were, in stage II, analysed for relevance, clarity, and sensitivity. Results: The translation process identified a few differences in wordings that were thoroughly debated to retain the meaning of the questions. Both patients and RNs considered the Swedish version of the SNAP Tool relevant to the palliative care context and its questions clear and easy to understand. Patients believed that their responses on the tool could be helpful in providing a clear structure for conversations and present a picture of their individual support needs. There were just a few considerations about sensitivity of questions from the patients’ perspectives and the RNs felt that some of the questions may need to be handled with care. Conclusions: This study demonstrates that the Swedish version of the SNAP Tool has good coverage of Swedish patients’ support needs, and that the questions are perceived as intended. This indicates that the SNAP Tool effectively captures a wide range of support needs and aligns with its intended purpose. The tool is appropriate for specialized palliative home care and allows the SNAP intervention to be made available to this group of patients.

Item Type: Article
Additional Information: Data availability: The data analysed during the current study are not publicly available as no datasets were generated, but information is available from the corresponding author on reasonable request. For information about SNAP, SNAP training, SNAP licencing, and other translations see https://thesnap.org.uk/ Funding information: Open access funding provided by Karolinska Institute. This study was funded with help from the Marie Cederschiöld University. The funding bodies had no influence in the design of the study and collection, analysis, and interpretation of data and in writing the manuscript. Open Access funding is provided by Karolinska Institutet.
Uncontrolled Keywords: content validity,palliative care,person-centred care,response processes,support needs approach for patients,translating,medicine(all) ,/dk/atira/pure/subjectarea/asjc/2700
Faculty \ School: Faculty of Medicine and Health Sciences > School of Health Sciences
UEA Research Groups: Faculty of Medicine and Health Sciences > Research Centres > Norwich Institute for Healthy Aging
Faculty of Medicine and Health Sciences > Research Centres > Lifespan Health
Faculty of Medicine and Health Sciences > Research Groups > Health Promotion
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Depositing User: LivePure Connector
Date Deposited: 10 Mar 2025 17:30
Last Modified: 06 Apr 2025 06:30
URI: https://ueaeprints.uea.ac.uk/id/eprint/98731
DOI: 10.1186/s12904-025-01715-4

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