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ToolsBlake, Jessica, Peryer, Guy, Dance, Rachel, Parke, Sheryl, Aryankhesal, Aidin and Farquhar, Morag (2025) How can healthcare professionals work with families to address misaligned expectations of recovery in brain injury rehabilitation? A scoping review. Brain Injury. ISSN 0269-9052
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Abstract
Introduction: Most survivors of severe acquired brain injuries will have significant long-term disability. During inpatient rehabilitation, families often have expectations of recovery that do not match healthcare professional opinion. This impacts on patient care, service processes, professional-family relations, and wellbeing. This review aimed to understand how family expectations are managed in this setting, and to explore potential areas of improvement. Method: A scoping review was conducted by searching CINAHL, Medline, EMBASE and Web of Science. Krieger et al’s ‘Conceptual Building Blocks’ provided a framework to analyze the data using a ‘best fit’ framework synthesis approach. Results: Twenty-one papers were included in the review. Six sub-themes within three overarching themes were generated, which explored recommendations for effective expectation management. The sub-themes within the ‘staff behaviors’ theme were ‘appropriate information provision,’ ‘open communication’ and ‘prioritize family.’ Sub-themes within ‘system behaviors’ were ‘cultural change’ and ‘increased resource.’ ‘Rehabilitation as a shared process’ was the third theme. Discussion: Misaligned expectations of recovery appear to reflect a range of unmet family needs related to their position within the healthcare hierarchy, professional-family communication, and their involvement in rehabilitation processes. Early identification of family and healthcare professional expectations alongside regular review may prevent misunderstanding and conflict.
| Item Type: | Article |
|---|---|
| Additional Information: | Funding information: This research is supported by the National Institute for Health and Care Research (NIHR) Applied Research Collaboration East of England (NIHR ARC EoE) at Cambridgeshire and Peterborough NHS Foundation Trust. Morag Farquhar is supported by the NIHR ARC EoE. The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care. |
| Uncontrolled Keywords: | brain injury,bad news,expectations,family,hope,rehabilitation,uncertainty,clinical neurology,developmental and educational psychology,neuroscience (miscellaneous) ,/dk/atira/pure/subjectarea/asjc/2700/2728 |
| Faculty \ School: | Faculty of Medicine and Health Sciences > School of Health Sciences Faculty of Medicine and Health Sciences > Norwich Medical School |
| UEA Research Groups: | Faculty of Medicine and Health Sciences > Research Centres > Lifespan Health Faculty of Medicine and Health Sciences > Research Centres > Institute for Volunteering Research Faculty of Medicine and Health Sciences > Research Centres > Norwich Institute for Healthy Aging Faculty of Medicine and Health Sciences > Research Groups > Health Promotion |
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| Depositing User: | LivePure Connector |
| Date Deposited: | 10 Jan 2025 01:01 |
| Last Modified: | 11 Feb 2025 10:30 |
| URI: | https://ueaeprints.uea.ac.uk/id/eprint/98162 |
| DOI: | 10.1080/02699052.2025.2450603 |
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