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Preston, Nancy, Hasselaar, Jeroen, Hughes, Sean, Kaley, Alex 
ORCID: https://orcid.org/0000-0002-1147-1604, Linge-Dahl, Lisa, Radvanyi, Ildiko, Tubman, Phil, Van Beek, Karen, Varey, Sandra and Payne, Sheila
(2020)
Disseminating research findings using a massive online open course for maximising impact and developing recommendations for practice.
BMC Palliative Care, 19.
ISSN 1472-684X
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Abstract
Background: Developing recommendations for how we deliver healthcare is often left to leading experts in a field. Findings from the Integrated Palliative Care in cancer and chronic conditions (InSup-C) study, which aimed to identify best practice in integrated palliative care in cancer, chronic obstructive pulmonary disease (COPD) and heart failure, led to recommendations developed through an expert consultation process. We also wanted to develop these recommendations further with participants who were largely clinicians and members of the public. Methods: Results from the InSup-C study were disseminated through a three-week massive open online course (MOOC) which ran in 2016, 2017 and 2019. The first course helped develop the final recommendations, which were ranked by MOOC participants in the subsequent courses. MOOC participants were predominantly clinicians, but also academics and members of the public. They rated how important each recommendation was on a 9 point scale (9 most important). Descriptive statistics were used to analyse the ratings. The results were compared to findings from the consultation. Results: Five hundred fifteen completed the last part of the course where the recommendations were ranked, of which 195 (38%) completed the ratings. The top recommendations related to: need to expand palliative care to non-malignant conditions; palliative care needs to include different dimensions of care including physical, psychological and spiritual; policies and regulations assessments should be made regularly; palliative care integration should be mandatory; and there should be greater availability of medicines. These differed compared to the top ranked recommendations by the consultation panel in relation to the importance of leadership and policy making. This may indicate that clinicians are more focused on daily care rather than the (inter) national agenda. Conclusions: Whilst both sets of recommendations are important, our study shows that we need to include the views of clinicians and the public rather than rely upon leading expert opinion alone. To keep recommendations fresh we need both the input of clinicians, the public and experts. When disseminating findings, MOOCs offer a useful way to gain greater reach with clinicians and the public, and importantly could be a vehicle to validate recommendations made by leading expert panels.
| Item Type: | Article |
|---|---|
| Additional Information: | Availability of data and materials: All data are archived at Lancaster University and may be obtained from the first author. Funding information: The research leading to these results has received funding from the European Union’s Seventh Framework Programme (FP7/2007–2013) under grant agreement n° 335555. The funders had no influence on the data collection, analysis or interpretation of the data. |
| Uncontrolled Keywords: | e-learning,integrated,palliative care,recommendations,medicine(all),sdg 3 - good health and well-being ,/dk/atira/pure/subjectarea/asjc/2700 |
| Faculty \ School: | Faculty of Social Sciences > School of Sociology |
| Related URLs: | |
| Depositing User: | LivePure Connector |
| Date Deposited: | 03 Jan 2025 01:05 |
| Last Modified: | 09 Jan 2025 01:02 |
| URI: | https://ueaeprints.uea.ac.uk/id/eprint/98081 |
| DOI: | 10.1186/s12904-020-00564-7 |
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