The Comprehensive Anxiety and Parkinson’s Scale (CAPS): co-development and initial validation of the long (CAPS-54) and short (CAPS-24) versions

Irving-Curran, Charlotte, Deane, Katherine H. O. ORCID: https://orcid.org/0000-0002-0805-2708, Ford, Catherine E. L. ORCID: https://orcid.org/0000-0002-8646-9402, Bartholomew, Kimberley ORCID: https://orcid.org/0000-0002-0171-7922, Malyon, Jackie, Chalmers, Robert and Irving-Curran, Daniel (2024) The Comprehensive Anxiety and Parkinson’s Scale (CAPS): co-development and initial validation of the long (CAPS-54) and short (CAPS-24) versions. Disability and Rehabilitation. ISSN 0963-8288

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Abstract

Purpose: Anxiety is a prevalent symptom of Parkinson’s disease, but is often under-recognised and challenging to characterise. The present study aimed to develop a comprehensive new scale that characterised the specific and nuanced experience of anxiety in people living with Parkinson’s disease. A shortened version of the scale was also developed. The psychometric properties of both versions of the scale were assessed for reliability and validity. Methods: Secondary analyses were conducted on data from 254 people with Parkinson’s disease and anxiety collected in a modified Nominal Group Technique ranking survey. Secondary analyses included exploratory factor analysis, reliability and validity analyses, and confirmatory factor analysis. Results: A standardised scale of anxiety and Parkinson’s disease, in its long Comprehensive Anxiety and Parkinson’s Scale − 54 (CAPS-54) and short versions (CAPS-24), was developed. Reliability and validity analyses of the scales demonstrated excellent factorial and internal consistency, as well as good convergent validity. Conclusions: The CAP Scales offer researchers and clinicians a more comprehensive means of assessing the experience of anxiety in the context of Parkinson’s disease than is currently available. Initial validation of the scales is promising. Future validation and identification of clinical boundaries with an independent sample is recommended.

Item Type: Article
Additional Information: Funding information: This work was supported by the University of East Anglia (UEA), Clinical Psychology Doctoral program and the National Institute for Health Research Applied Research Collaboration East of England (NIHR ARC EoE) at Cambridge and Peterborough NHS Foundation Trust. The views expressed are those of the authors and not necessarily those of the NHS, the NIHR or the Department of Health and Social Care.National Institute for Health and Care Research.
Faculty \ School:
Faculty of Medicine and Health Sciences > School of Health Sciences
Faculty of Medicine and Health Sciences > Norwich Medical School
Faculty of Social Sciences > School of Education and Lifelong Learning
UEA Research Groups: Faculty of Medicine and Health Sciences > Research Centres > Institute for Volunteering Research
Faculty of Medicine and Health Sciences > Research Groups > Dementia & Complexity in Later Life
Faculty of Medicine and Health Sciences > Research Centres > Lifespan Health
Faculty of Social Sciences > Research Groups > Sport, Health And Education
Depositing User: LivePure Connector
Date Deposited: 05 Dec 2024 01:31
Last Modified: 09 Dec 2024 01:39
URI: https://ueaeprints.uea.ac.uk/id/eprint/97901
DOI: 10.1080/09638288.2024.2435522

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