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Langdon, Peter E. 
ORCID: https://orcid.org/0000-0002-7745-1825, Apanasionok, Magdalena M., Scripps, Emma, Barrowcliff, Alastair, Biswas, Asit, Bunning, Karen ORCID: https://orcid.org/0000-0002-7396-9205, Burbidge, Cheryl, Byron-Daniel, Katherine, Cookson, Alex, Croom, Sarah, Filipczuk, Malwina, Gillespie, David, Hastings, Richard P., Jahoda, Andrew, McNamara, Rachel, Patterson, Lawrence, Rai, Dheeraj, Steward, Robyn and Gray, Kylie M.
(2024)
Behavioural interventions to treat anxiety in adults with autism and moderate to severe intellectual disabilities: The BEAMS-ID feasibility study.
Journal of Applied Research in Intellectual Disabilities, 37 (5).
ISSN 1360-2322
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Abstract
Background: The aim of this feasibility study was to adapt and model a behavioural intervention for anxiety with autistic adults with moderate to severe intellectual disabilities. Method: Twenty-eight autistic adults with moderate or severe intellectual disabilities, 37 carers, and 40 therapists took part in this single-group non-randomised feasibility study designed to test intervention feasibility and acceptability, outcome measures, and research processes. Results: The intervention was judged as feasible and acceptable by autistic adults with intellectual disabilities, carers, and therapists. Minor intervention revisions were suggested. Carers completed 100% of outcome measures and the missing data rate was low. Complying with legislation governing the inclusion of participants who lack capacity to decide whether they wanted to take part in this study led to an average 5-week enrolment delay. Conclusion: The intervention and associated study processes were judged to be feasible and acceptable and should now be tested within a larger randomised trial.
| Item Type: | Article |
|---|---|
| Additional Information: | Funding Information: We wish to sincerely thank all the autistic people who took part in our study and their carers who showed such enthusiasm and appreciation for the opportunity to take part in this study. We also wish to express our gratitude to the National Autistic Society for their support to the project. We also wish to thank the therapists who delivered the intervention and our site leads: (1) Coventry and Warwickshire Partnership NHS Trust: Sophie Bates, Bethany Roberts, Sophie Hodges, Paula Kiley, Emily Fulton-Hamilton, Alexandra Gordon-Brown, Serena Hinze, Rachel Lee. (2) Herefordshire and Worcestershire Health and Care NHS Trust: Jodie Chippendale, Sarah Bravey, Natasha Tacy. (3) Leicestershire Partnership NHS Trust: Amrita Dhanda. (4) Mersey Care NHS Foundation Trust: Claire Lloyd, Sarah Wastell, Bethany Bell, Andrew Tong, Charlotte Marshall, Linda Helsby, Lyndsey Miller, Dionne Broda, Liam Kingdon. (5) Solent NHS Trust: Louise Hannant, Penny Vanderplank, Jo Ball. We also wish to thank all the hard-working R&D staff at sites for persevering with this study during a global pandemic. Finally, we wish to thank Diana Smith and Alison Baker from the Centre for Research in Intellectual and Developmental Disabilities, University of Warwick, for providing administrative support. Funding Information: This study was funded by the National Institute for Health and Care Research (NIHR) Health Technology Assessment (NIHR129804). The views expressed are those of the authors and not necessarily those of the NIHR or the Department of Health and Social Care. The detailed findings from this study are reported within Langdon et al. ( 2024 ). Publisher Copyright: © 2024 The Author(s). Journal of Applied Research in Intellectual Disabilities published by John Wiley & Sons Ltd. |
| Uncontrolled Keywords: | anxiety disorders,autism,exposure therapy,feasibility study,learning disabilities,psychological treatment,education,developmental and educational psychology ,/dk/atira/pure/subjectarea/asjc/3300/3304 |
| Faculty \ School: | Faculty of Medicine and Health Sciences > School of Health Sciences |
| Related URLs: | |
| Depositing User: | LivePure Connector |
| Date Deposited: | 06 Sep 2024 09:34 |
| Last Modified: | 18 Dec 2024 01:38 |
| URI: | https://ueaeprints.uea.ac.uk/id/eprint/96577 |
| DOI: | 10.1111/jar.13282 |
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