Patients’ expectations for the functional and psychosocial outcomes of orbital decompression surgery for thyroid eye disease:a qualitative study

Wickwar, Sadie ORCID: https://orcid.org/0000-0001-9307-4532, McBain, Hayley, Edmunds, Matthew R., Ezra, Daniel G., Rose, Geoffrey E. and Newman, Stanton P. (2018) Patients’ expectations for the functional and psychosocial outcomes of orbital decompression surgery for thyroid eye disease:a qualitative study. Psychology, Health and Medicine, 23 (4). pp. 475-484. ISSN 1354-8506

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Abstract

Patients with appearance-altering conditions may be dissatisfied with the outcomes of reconstructive surgery due to unmet expectations. This study explored patients’ expectations of orbital decompression surgery for thyroid eye disease (TED) and whether these were met. Semi-structured interviews were conducted at two times: (1) in the weeks after patients were listed for decompression surgery and before surgery; (2) up to 12 months after surgery. Thematic analysis was performed for each time point, to identify themes within the data. Fourteen adults with TED were interviewed prior to surgery and five were followed up after surgery. Thematic analyses found: (1) Prior to surgery, patients had formed expectations through online information about the procedure, consultations with physicians, the impact TED had on their lives, and speaking to relevant others. Patients had specific expectations about the procedure, the recovery, post-operative appearance and post-operative vision. (2) After surgery, patients generally felt their appearance and well-being had improved. However, dissatisfaction was linked to unanticipated specific aspects of surgical care, recovery, or appearance. Dissatisfaction can arise from unmet expectations for the outcomes of reconstructive surgery. Physicians should be aware of the processes by which patients form expectations, for example different types and quality of online information. Ensuring that preoperative expectations are realistic could enhance satisfaction after surgery.

Item Type: Article
Additional Information: Funding Information: The authors would like to acknowledge those who funded the research (City, University of London and Moorfields Eye Hospital Special Trustees). DGE and GER received partial funding from the Department of Health’s NIHR Biomedical Research Centre for Ophthalmology at Moorfields Eye Hospital and UCL Institute of Ophthalmology. The views expressed in this publication are those of the authors and not necessarily those of the Department of Health. Funding Information: This work was funded by City, University of London and Moorfields Eye Hospital Special Trustees. Publisher Copyright: © 2017 Informa UK Limited, trading as Taylor & Francis Group.
Uncontrolled Keywords: patient expectations,psychosocial adjustment,reconstructive surgery,thyroid eye disease,treatment satisfaction,clinical psychology,applied psychology,psychiatry and mental health,sdg 3 - good health and well-being ,/dk/atira/pure/subjectarea/asjc/3200/3203
Faculty \ School: Faculty of Medicine and Health Sciences > Norwich Medical School
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Depositing User: LivePure Connector
Date Deposited: 04 Sep 2024 13:36
Last Modified: 25 Sep 2024 18:07
URI: https://ueaeprints.uea.ac.uk/id/eprint/96559
DOI: 10.1080/13548506.2017.1356930

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