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Camino, Julieta 
ORCID: https://orcid.org/0000-0002-6721-8675, Trucco, Ana Paula, Kishita, Naoko ORCID: https://orcid.org/0000-0001-8453-2714, Mioshi, Eneida and Backhouse, Tamara ORCID: https://orcid.org/0000-0001-8194-4174
(2024)
How do family carers assist people with dementia? A qualitative observation study of daily tasks.
British Journal of Occupational Therapy.
ISSN 0308-0226
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Abstract
Introduction: As people with dementia progressively experience difficulties when performing daily tasks, family carers often become the main providers of support. Little is known about the role of carer support during task performance. Therefore, Occupational Therapy interventions are often underinformed in this area. Knowledge of how carers assist people with dementia could support Occupational Therapists in promoting participation in daily tasks. The objective was to explore how carers support people with dementia during the performance of daily tasks. Methods: A secondary analysis was conducted on observations video-recorded for the TASKed project, where people with dementia completed a task with carer support. Data were analysed using an inductive reflexive thematic analysis approach. Findings: Video recordings of 21 dyads were included in this study. Five themes were generated depicting how carers supported people with dementia during task performance: (1) person-enabled assistance, (2) goal-directed assistance, (3) carer-led assistance, (4) partnership-oriented assistance and (5) bystander. Conclusion: Our findings suggest carers employ different approaches when assisting people with dementia with daily tasks. Knowledge of these different modes of assistance could help Occupational Therapists and researchers understand what works well and what could be changed to facilitate the participation of people with dementia in daily activities.
| Item Type: | Article |
|---|---|
| Additional Information: | Data availability statement: During the development of the submitted research, Patient and Public Involvement in the study was included when planning the research. Funding information: The author(s) disclosed receipt of the following financial support for the research, authorship and/or publication of this article: This work was supported in part by a grant awarded to EM for the TASKed Study, funded by the Alzheimer’s Society (AS-SF-241). JC was a recipient of a Faculty of Medicine and Health Sciences PhD Scholarship at UEA. APT is a recipient of an MND Scotland PhD Scholarship. TB was supported by an Alzheimer’s Society Fellowship (372 AS-JF-17-002). NK reported no disclosures. This work was also part-funded by the National Institute of Health and Care Research (NIHR) Applied Research Collaboration East of England (ARC EoE) program. The views expressed are those of the authors and not necessarily those of the NIHR, NHS or Department of Health and Social Care. |
| Uncontrolled Keywords: | carer,activities of daily living,approaches to assistance,dementia,occupational therapy ,/dk/atira/pure/subjectarea/asjc/3600/3609 |
| Faculty \ School: | Faculty of Medicine and Health Sciences > School of Health Sciences |
| UEA Research Groups: | Faculty of Medicine and Health Sciences > Research Centres > Lifespan Health Faculty of Medicine and Health Sciences > Research Groups > Dementia & Complexity in Later Life Faculty of Arts and Humanities > Research Groups > Centre for Japanese Studies Faculty of Medicine and Health Sciences > Research Centres > Norwich Institute for Healthy Aging |
| Related URLs: | |
| Depositing User: | LivePure Connector |
| Date Deposited: | 25 Jun 2024 09:30 |
| Last Modified: | 05 Oct 2024 23:58 |
| URI: | https://ueaeprints.uea.ac.uk/id/eprint/95664 |
| DOI: | 10.1177/03080226241267172 |
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