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Camino, Julieta 
ORCID: https://orcid.org/0000-0002-6721-8675, Khondoker, Mizanur ORCID: https://orcid.org/0000-0002-1801-1635, Trucco, Ana Paula, Backhouse, Tamara ORCID: https://orcid.org/0000-0001-8194-4174, Kishita, Naoko ORCID: https://orcid.org/0000-0001-8453-2714 and Mioshi, Eneida
(2022)
Contributions of caregiver management styles to the discrepancy between reported and observed task performance in people with dementia.
Journal of Alzheimers Disease, 88 (4).
pp. 1605-1614.
ISSN 1387-2877
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Abstract
Background: The identification and understanding of the discrepancy between caregivers' reports of people with dementia's (PwD) performance of activities of daily living (ADLs) and observed performance, could clarify what kind of support a PwD effectively needs when completing tasks. Strategies used by caregivers have not been included in the investigation of this discrepancy. Objective: To (1) investigate if caregivers' report of PwD's ADL performance are consistent with PwD's observed performance; (2) explore if caregiver management styles, depression, and anxiety, contribute to this discrepancy. Methods: PwD (n = 64) were assessed with standardized performance-based (Assessment of Motor and Process Skills, AMPS) and informant-based (Disability Assessment for Dementia, DAD) ADL assessments. Caregivers completed depression (PHQ-9), anxiety (GAD-7), and dementia management style (DMSS: criticism, active-management, and encouragement) questionnaires. Cohen's kappa determined agreement/disagreement in ADL performance. To investigate the potential discrepancy between the DAD and AMPS, a continuous variable was generated: comparative ADL score. Multiple linear regression analysis explored whether caregivers' management styles, depression or anxiety could explain the ADL discrepancy. Results: Poor level of agreement between observed and reported ADL performance [k = -0.025 (95% CI -0.123 -0.073)] was identified, with most caregivers underestimating ADL performance. The combined model explained 18% (R2 = 0.18, F (5,55) = 2.52, p≤0.05) of the variance of the comparative ADL score. Active-management (β= -0.037, t (60) = -3.363, p = 0.001) and encouragement (β= 0.025, t (60) = 2.018, p = 0.05) styles made the largest and statistically significant contribution to the model. Conclusion: Encouragement style could be advised for caregivers who underestimate ADL performance, while active management style for those who overestimate it. Findings have scope to increase caregivers' abilities to support PwD activity engagement in daily life.
| Item Type: | Article |
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| Additional Information: | Funding Information: This work was supported in part by a grant awarded to EM for the TASKed Study, funded by the Alzheimer’s Society (AS-SF-241). JC is a recipient of a School of Health Sciences PhD Scholarship. APT is a recipient of an MND Scotland PhD Scholarship. TB is a recipient of an Alzheimer’s Society Fellowship. EM, JC and APT are also supported by the National Institute for Health and Care Research (NIHR) Applied Research Collaboration East of England (NIHR ARC EoE) at Cambridge and Peterborough NHS Foundation Trust. The views expressed are those of the authors, and not necessarily those of the NIHR, NHS or Department of Health and Social Care. |
| Uncontrolled Keywords: | activities of daily living,anxiety,caregiver management styles,depression,neuroscience(all),clinical psychology,geriatrics and gerontology,psychiatry and mental health,sdg 3 - good health and well-being ,/dk/atira/pure/subjectarea/asjc/2800 |
| Faculty \ School: | Faculty of Medicine and Health Sciences > School of Health Sciences Faculty of Medicine and Health Sciences > Norwich Medical School |
| UEA Research Groups: | Faculty of Medicine and Health Sciences > Research Centres > Population Health Faculty of Science > Research Groups > Norwich Epidemiology Centre Faculty of Medicine and Health Sciences > Research Groups > Norwich Epidemiology Centre Faculty of Medicine and Health Sciences > Research Groups > Epidemiology and Public Health Faculty of Medicine and Health Sciences > Research Groups > Dementia & Complexity in Later Life Faculty of Medicine and Health Sciences > Research Centres > Lifespan Health Faculty of Arts and Humanities > Research Groups > Centre for Japanese Studies Faculty of Medicine and Health Sciences > Research Centres > Norwich Institute for Healthy Aging |
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| Depositing User: | LivePure Connector |
| Date Deposited: | 03 May 2024 14:31 |
| Last Modified: | 25 Sep 2024 17:47 |
| URI: | https://ueaeprints.uea.ac.uk/id/eprint/95061 |
| DOI: | 10.3233/JAD-220155 |
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