“I will try anything” the experience of working age stroke survivors living with chronic post-stroke pain: an interpretative phenomenological analysis

Bruger, Johanna, Semlyen, Joanna ORCID: https://orcid.org/0000-0001-5372-1344 and Ford, Catherine Elaine Longworth ORCID: https://orcid.org/0000-0002-8646-9402 (2024) “I will try anything” the experience of working age stroke survivors living with chronic post-stroke pain: an interpretative phenomenological analysis. Disability and Rehabilitation, 46 (20). pp. 4745-4754. ISSN 0963-8288

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Abstract

Purpose: To investigate the experience of working age adults living with chronic post-stroke pain in the United Kingdom (UK). Methods: Semi-structured interviews were conducted with eight working age (46–64 years) UK-based stroke survivors who experience chronic post-stroke pain (≥3 months). The interviews were analysed using interpretative phenomenological analysis. Results: The analysis led to three Group Experiential Themes: “The Solitude of the Pain Experience,” “Unsatisfactory Healthcare and the Need for Self-Care” and “The Development of Pain Acceptance.” Findings suggest that individuals see their post-stroke pain as an invisible disability, which is overlooked and misunderstood by others. Furthermore, in the absence of a differential post-stroke pain diagnosis, clear, accurate information and alternatives to pharmacological treatments, individuals with post-stroke pain invest their own resources in finding answers and a way to live with the pain. Conclusions: The findings suggest the need for further education on post-stroke pain for healthcare professionals, the consideration of pain in post-stroke assessments, the need for clear differential pain diagnoses and the provision of accurate information to patients. Research is needed to establish non-pharmacological evidence-based treatment approaches, such as pain management programmes, peer support and psychological interventions.

Item Type:	Article
Additional Information:	Funding Information: This research was supported by the University of East Anglia as part fulfilment of the first author’s Doctorate in Clinical Psychology.
Uncontrolled Keywords:	chronic pain,interpretative phenomenological analysis,lived experience,post-stroke pain,stroke,working age,rehabilitation ,/dk/atira/pure/subjectarea/asjc/2700/2742
Faculty \ School:	Faculty of Medicine and Health Sciences > Norwich Medical School
UEA Research Groups:	Faculty of Medicine and Health Sciences > Research Groups > Epidemiology and Public Health Faculty of Medicine and Health Sciences > Research Centres > Population Health Faculty of Medicine and Health Sciences > Research Centres > Lifespan Health
Related URLs:	http://www.scopus.com/inward/record.url?...
Depositing User:	LivePure Connector
Date Deposited:	10 Jan 2024 01:39
Last Modified:	22 Nov 2024 01:38
URI:	https://ueaeprints.uea.ac.uk/id/eprint/94136
DOI:	10.1080/09638288.2023.2288688

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