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Flynn, Samantha, Vereenooghe, Leen, Hastings, Richard P., Adams, Dawn, Cooper, Sally-Ann, Gore, Nick, Hatton, Chris, Hood, Kerry, Jahoda, Andrew, Langdon, Peter E. 
ORCID: https://orcid.org/0000-0002-7745-1825, McNamara, Rachel, Oliver, Chris, Roy, Ashok, Totsika, Vasiliki and Waite, Jane
(2017)
Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: A systematic review.
Clinical Psychology Review, 57.
pp. 32-44.
ISSN 0272-7358
Abstract
Mental health problems affect people with intellectual disabilities (ID) at rates similar to or in excess of the non-ID population. People with severe ID are likely to have persistent mental health problems. In this systematic review (PROSPERO 2015:CRD42015024469), we identify and evaluate the methodological quality of available measures of mental health problems or well-being in individuals with severe or profound ID. Electronic searches of ten databases identified relevant publications. Two reviewers independently reviewed titles and abstracts of retrieved records (n = 41,232) and full-text articles (n = 573). Data were extracted and the quality of included papers was appraised. Thirty-two papers reporting on 12 measures were included. Nine measures addressed a broad spectrum of mental health problems, and were largely observational. One physiological measure of well-being was included. The Aberrant Behavior Checklist, Diagnostic Assessment for the Severely Handicapped Scale-II and Mood, Interest and Pleasure Questionnaire are reliable measures in this population. However, the psychometric properties of six other measures were only considered within a single study – indicating a lack of research replication. Few mental health measures are available for people with severe or profound ID, particularly lacking are tools measuring well-being. Assessment methods that do not rely on proxy reports should be explored further.
| Item Type: | Article |
|---|---|
| Additional Information: | Role of funding sources: This review was funded by the Baily Thomas Charitable Fund (Reference number: TRUST/RNA/AC/SG/3543/6297), and was sponsored by the University of Warwick (Reference number: REGO-2015-1605). |
| Uncontrolled Keywords: | sdg 3 - good health and well-being ,/dk/atira/pure/sustainabledevelopmentgoals/good_health_and_well_being |
| Faculty \ School: | Faculty of Medicine and Health Sciences > Norwich Medical School |
| Related URLs: | |
| Depositing User: | LivePure Connector |
| Date Deposited: | 25 Jul 2023 14:30 |
| Last Modified: | 31 Jul 2023 00:10 |
| URI: | https://ueaeprints.uea.ac.uk/id/eprint/92689 |
| DOI: | 10.1016/j.cpr.2017.08.006 |
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