A systematic review and narrative synthesis of inclusive health and social care research with people with intellectual disabilities: How are co‐researchers involved and what are their experiences?

Hewitt, Olivia, Langdon, Peter E. ORCID: https://orcid.org/0000-0002-7745-1825, Tapp, Katherine and Larkin, Michael (2023) A systematic review and narrative synthesis of inclusive health and social care research with people with intellectual disabilities: How are co‐researchers involved and what are their experiences? Journal of Applied Research in Intellectual Disabilities, 36 (4). pp. 681-701. ISSN 1360-2322

Preview

PDF (Hewitt_etal_2023_ResearchIntellectDisabil) - Published Version Available under License Creative Commons Attribution. Download (1MB) | Preview

Abstract

Background: Using inclusive research methods with people with intellectual disabilities is increasingly common. A recent consensus statement identified key elements when conducting and reporting inclusive research with people with intellectual disabilities. This review identifies the range of health and social care research topics using inclusive research methodologies, systematically appraises the involvement of researchers with intellectual disabilities, and identifies facilitators and barriers to inclusive research. Researchers' experiences of engaging with inclusive research are synthesised. Method: Seventeen empirical studies focused upon inclusive health and social care research were identified. The associated inclusive research methodologies employed, and the stages in which researchers with intellectual disabilities were involved, along with the experiences of researchers with and without intellectual disabilities were synthesised. Results: Papers focused on a broad range of health and social care topics and largely employed qualitative or mixed-methods designs. Researchers with intellectual disabilities were frequently involved with data collection, analysis and dissemination. Facilitators of inclusive research comprised sharing power, team working, having sufficient resources and making research methodologies accessible. Conclusions: Researchers with intellectual disabilities are involved in a wide range of methodologies and research tasks. How the added value of inclusive research is measured and its impact on outcomes, require consideration.

Item Type:	Article
Additional Information:	Research Funding: National Institute for Health Research. Grant Number: NIHR300501
Uncontrolled Keywords:	co-production,health and social care research,inclusive,intellectual disability,research,systematic review,education,developmental and educational psychology,sdg 3 - good health and well-being ,/dk/atira/pure/subjectarea/asjc/3300/3304
Faculty \ School:	Faculty of Medicine and Health Sciences > Norwich Medical School
Related URLs:	http://www.scopus.com/inward/record.url?...
Depositing User:	LivePure Connector
Date Deposited:	24 Jul 2023 16:30
Last Modified:	03 Aug 2023 09:32
URI:	https://ueaeprints.uea.ac.uk/id/eprint/92656
DOI:	10.1111/jar.13100

Downloads

Actions (login required)

View Item