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Trucco, Ana Paula, Backhouse, Tamara 
ORCID: https://orcid.org/0000-0001-8194-4174, Mioshi, Eneida and Kishita, Naoko ORCID: https://orcid.org/0000-0001-8453-2714
(2024)
Factors associated with grief in informal carers of people living with Motor Neuron Disease: a mixed methods systematic review.
Death Studies, 48 (2).
pp. 103-117.
ISSN 0748-1187
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Abstract
The purpose of this mixed methods systematic review was to identify factors associated with anticipatory grief, post-death grief, and prolonged grief in informal carers of people living with Motor Neuron Disease (MND) to inform future research and practice. Six electronic databases were searched and two quantitative and eight qualitative studies were identified. Five overarching themes were generated through thematic synthesis. The findings suggest that there are factors that may affect different grieving processes. It might be particularly important to target some factors prior and after the death of the person living with MND such as the knowledge about the progression of the disease, changes in relationships, anxiety and depressive symptoms of carers, and planning for death of the care recipient. Factors that may affect all three grieving processes were also identified such as negative experiences of caregiving, experiences of losses, end of life and psychological support, and emotional avoidance coping.
| Item Type: | Article |
|---|---|
| Additional Information: | Funding information: APT’s PhD studentship is supported by MND Scotland. TB was supported by an Alzheimer’s Society fellowship 372 [AS-JF-17-002]. EM is supported by an Alzheimer’s Society Senior Fellowship [AS-SF-241], and by the National Institute of Health and Care Research (NIHR) Applied Research Collaboration East of England (ARC EoE) program. |
| Uncontrolled Keywords: | developmental and educational psychology,arts and humanities (miscellaneous),clinical psychology ,/dk/atira/pure/subjectarea/asjc/3200/3204 |
| Faculty \ School: | Faculty of Medicine and Health Sciences > School of Health Sciences |
| UEA Research Groups: | Faculty of Medicine and Health Sciences > Research Groups > Dementia & Complexity in Later Life Faculty of Arts and Humanities > Research Groups > Centre for Japanese Studies Faculty of Medicine and Health Sciences > Research Centres > Norwich Institute for Healthy Aging Faculty of Medicine and Health Sciences > Research Centres > Lifespan Health |
| Related URLs: | |
| Depositing User: | LivePure Connector |
| Date Deposited: | 13 Mar 2023 12:30 |
| Last Modified: | 12 Jan 2024 01:39 |
| URI: | https://ueaeprints.uea.ac.uk/id/eprint/91491 |
| DOI: | 10.1080/07481187.2023.2191351 |
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