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Contreras, Milena, Mioshi, Eneida and Kishita, Naoko 
ORCID: https://orcid.org/0000-0001-8453-2714
(2022)
What are the educational and support needs of family carers looking after someone in the early stages of Alzheimer’s disease? A qualitative retrospective approach.
Health & Social Care in the Community, 30 (5).
pp. 1726-1734.
ISSN 0966-0410
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Abstract
The current study aimed to identify the educational and support needs of family carers of people with dementia in the early stages of dementia by employing a qualitative approach with retrospective semi-structured interviews with family carers of people in the later stages of Alzheimer’s disease (AD). Semi-structured individual interviews were conducted via telephone or Microsoft Teams video call. Purposive sampling was used to recruit twelve family carers of people with moderate or severe AD. An interview guide was used to explore the retrospective views of the carer’s educational and support needs in the early stages of AD. The interviews were audio-recorded transcribed and analysed using thematic analysis. Three overarching themes were identified. Theme 1 highlighted that family carers experienced frequent and overwhelming need to fulfil a family obligation and feelings of guilt to seek help, which acted as barriers to seeking support, in the early stages. In theme 2, family carers rarely received support in the early stages and available resources were limited to self-help materials. Finally, in Theme 3, family carers wanted to receive interpersonal tailored support to seek practical advice and to learn psychological skills to build resilience in the early stages to overcome emotional challenges. The development of interventions that are specifically designed for family carers in the early stages is critical. The key components to be considered for future interventions are discussed.
| Item Type: | Article |
|---|---|
| Additional Information: | Funding information: This article presents independent research partly funded by the National Institute for Health Research (NIHR) Applied Research Collaborations (ARC) East of England, at Cambridgeshire and Peterborough NHS Foundation Trust. The views expressed are those of the author(s) and not necessarily those of the NHS, the NIHR or the Department of Health and Social Care. MC’s studentship was also supported by Norfolk and Suffolk Primary and Community Care Research Office and Faculty of Medicine and Health Sciences, University of East Anglia. |
| Uncontrolled Keywords: | anxiety,dementia,diagnosis,guilt,informal caregivers,social sciences (miscellaneous),sociology and political science,health policy,public health, environmental and occupational health,sdg 3 - good health and well-being ,/dk/atira/pure/subjectarea/asjc/3300/3301 |
| Faculty \ School: | Faculty of Medicine and Health Sciences > School of Health Sciences |
| UEA Research Groups: | Faculty of Medicine and Health Sciences > Research Groups > Dementia & Complexity in Later Life Faculty of Medicine and Health Sciences > Research Centres > Norwich Institute for Healthy Aging Faculty of Medicine and Health Sciences > Research Centres > Lifespan Health |
| Related URLs: | |
| Depositing User: | LivePure Connector |
| Date Deposited: | 05 Aug 2021 00:08 |
| Last Modified: | 19 Oct 2023 03:05 |
| URI: | https://ueaeprints.uea.ac.uk/id/eprint/80983 |
| DOI: | 10.1111/hsc.13552 |
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