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Gona, Joseph K., Newton, Charles, Hartley, Sally and Bunning, Karen 
ORCID: https://orcid.org/0000-0002-7396-9205
(2020)
Development of self-help groups for caregivers of children with disabilities in Kilifi, Kenya: Process evaluation.
African Journal of Disability, 9.
ISSN 2223-9170
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Abstract
Background: Caring for a child with disabilities in a resource-poor setting brings many challenges to the caregiver. We examined the development of self-help groups for caregivers in a rural part of Kenya. Objectives: To conduct a process evaluation on the development of self-help groups during a 10-month set-up period, focusing on implementation and mechanisms associated with their functional status. Methods: Using a realist evaluation design, we set up 20 self-help groups for 254 caregivers. An evaluation was conducted to investigate implementation and mechanisms of impact. Implementation focused on caregiver registration, community group support and monitoring visit compliance. Data were collected from group registers, records of meetings and field notes. Mechanisms of impact employed a framework of strengths-weaknesses-opportunities-threats to review the groups at the end of the 10-month set-up period. Results: Recruitment resulted in registration of 254 participants to 18 groups-two groups disbanded early. Post-evaluation included 11 active and 7 inactive groups. Compliance with the monitoring visits was consistent across the active groups. All groups engaged in 'merrygo-round' activities. The active groups were characterised by strong leadership and at least one successful income generation project; the inactive had inconsistent leadership and had dishonest behaviour both within the group and/or externally in the community. Mediators associated with functional status included the following: available literacy and numeracy skills, regular meetings with consistent attendance by the members, viable income generating projects, geographical proximity of membership and strong leadership for managing threats. Conclusion: Self-help groups have the potential to progress in resource-poor settings. However, critical to group progression are literacy and numeracy skills amongst the members, their geographical proximity, regular meetings of the group, viable income generating projects and strong leadership.
| Item Type: | Article |
|---|---|
| Uncontrolled Keywords: | caregivers,children with disabilities,community-based inclusive development,self-help groups,physical therapy, sports therapy and rehabilitation,rehabilitation ,/dk/atira/pure/subjectarea/asjc/3600/3612 |
| Faculty \ School: | Faculty of Medicine and Health Sciences > School of Health Sciences |
| UEA Research Groups: | Faculty of Medicine and Health Sciences > Research Groups > Rehabilitation Faculty of Medicine and Health Sciences > Research Centres > Lifespan Health |
| Related URLs: | |
| Depositing User: | LivePure Connector |
| Date Deposited: | 23 May 2020 00:07 |
| Last Modified: | 19 Oct 2023 02:41 |
| URI: | https://ueaeprints.uea.ac.uk/id/eprint/75293 |
| DOI: | 10.4102/ajod.v9i0.650 |
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