Development of the MiNDToolkit for management of cognitive and behavioural impairment in motor neurone disease

Radakovic, Ratko, Copsey, Helen, Moore, Carmel and Mioshi, Eneida (2020) Development of the MiNDToolkit for management of cognitive and behavioural impairment in motor neurone disease. Neurodegenerative Disease Management, 10 (1). pp. 15-25. ISSN 1758-2024

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Abstract

Aim : To develop structured guidance, recommendations and techniques for non-pharmacological management of cognitive and behavioural impairments in motor neurone disease (MND), called the MiNDToolkit. Methods : A 4-round modified-Delphi method was utilised (online and face-to-face meeting), supplemented by recent research, recommendations, expertise from allied health-professionals (AHP) clinicians, researchers and clients. Results : Round-1 (N=47) identified AHPs techniques. Round-2 (N=23) and -3 (N=19) used expert consensus, refining general focus, specific elements and techniques. Round-4 (N=8) applied personal, lived and occupational experience, finalising the general structure and content of specific techniques. Conclusion : The MiNDToolkit is composed of multiple tools to structure decision-making through flowcharts, decision-trees and checklists, provide information about impairments, assessment recommendations and techniques or strategies for non-pharmacological management cognitive or behavioural impairments in MND.

Item Type:	Article
Additional Information:	Funding information: This work was funded by the Motor Neurone Disease Association. The authors have no conflict of interest to report. This is a summary of research part funded by the NIH Research Applied Research Collaboration East of England (ARC EoE) program. The views expressed are those of the authors, and not necessarily those of the National Institute of Health Research, NHS or Department of Health and Social Care.
Faculty \ School:	Faculty of Medicine and Health Sciences > School of Health Sciences
UEA Research Groups:	Faculty of Medicine and Health Sciences > Research Groups > Dementia & Complexity in Later Life Faculty of Medicine and Health Sciences > Research Centres > Norwich Institute for Healthy Aging Faculty of Medicine and Health Sciences > Research Centres > Lifespan Health
Depositing User:	LivePure Connector
Date Deposited:	09 Jan 2020 04:21
Last Modified:	18 Apr 2025 00:11
URI:	https://ueaeprints.uea.ac.uk/id/eprint/73566
DOI:	10.2217/nmt-2019-0035

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