Development of the MiNDToolkit for Management of Cognitive and Behavioral Impairment in Motor Neuron Disease

Radakovic, Ratko, Copsey, Helen, Moore, Carmel and Mioshi, Eneida (2020) Development of the MiNDToolkit for Management of Cognitive and Behavioral Impairment in Motor Neuron Disease. Neurodegenerative Disease Management, 10 (1). pp. 15-25. ISSN 1758-2024

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Abstract

Aim: To develop structured guidance, recommendations and techniques for nonpharmacologicalmanagement of cognitive and behavioral impairments in motor neuron disease, called the MiNDToolkit. Methods: A four-round-modified Delphi method was utilized (online and face-to-face meeting), supplemented by recent research, recommendations, expertise from allied health professionals, clinicians, researchers and clients. Results: Round 1 (N = 47) identified allied health professionals techniques. Round 2 (N = 23) and 3 (N = 19) used expert consensus, refining general focus, specific elements and techniques. Round 4 (N = 8) applied personal, lived and occupational experience, finalizing the general structure and content of specific techniques. Conclusion: The MiNDToolkit is composed of multiple tools to structure decision-making through flowcharts, decision trees and checklists, provide information about impairments, assessment recommendations and techniques or strategies for nonpharmacologicalmanagement cognitive or behavioral impairments in motor neuron disease.

Item Type:	Article
Additional Information:	Funding information: This work was funded by the Motor Neurone Disease Association. The authors have no conflict of interest to report. This is a summary of research part funded by the NIH Research Applied Research Collaboration East of England (ARC EoE) program. The views expressed are those of the authors, and not necessarily those of the National Institute of Health Research, NHS or Department of Health and Social Care.
Uncontrolled Keywords:	amyotrophic lateral sclerosis,amyotrophic lateral sclerosis frontotemporal spectrum disorder,behavioral impairment,cognitive impairment,frontotemporal dementia,management,nonpharmacological,clinical neurology ,/dk/atira/pure/subjectarea/asjc/2700/2728
Faculty \ School:	Faculty of Medicine and Health Sciences > School of Health Sciences
UEA Research Groups:	Faculty of Medicine and Health Sciences > Research Groups > Dementia & Complexity in Later Life Faculty of Medicine and Health Sciences > Research Centres > Norwich Institute for Healthy Aging Faculty of Medicine and Health Sciences > Research Centres > Mental Health and Social Care (fka Lifespan Health)
Related URLs:	http://www.scopus.com/inward/record.url?...
Depositing User:	LivePure Connector
Date Deposited:	09 Jan 2020 04:21
Last Modified:	18 Mar 2026 08:30
URI:	https://ueaeprints.uea.ac.uk/id/eprint/73566
DOI:	10.2217/nmt-2019-0035

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