A Patient-Centered Description of Severe Asthma:Patient Understanding Leading to Assessment for a Severe Asthma Referral (PULSAR)

Winders, Tonya A, Wilson, Andrew M, Fletcher, Monica J, McGuinness, Anthony and Price, David B (2019) A Patient-Centered Description of Severe Asthma:Patient Understanding Leading to Assessment for a Severe Asthma Referral (PULSAR). The Patient, 12 (5). 539–549. ISSN 1178-1653

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Abstract

BACKGROUND: Although severe asthma can be life-threatening, many patients are unaware they have this condition. OBJECTIVES: Patient Understanding Leading to Assessment for a Severe Asthma Referral (PULSAR) is a novel, multidisciplinary working group aiming to develop and disseminate a global, patient-centered description of severe asthma to improve patient understanding of severe asthma and effect a change in patient behavior whereby patients are encouraged to visit their healthcare professional, when appropriate. METHODS: Current definitions from patient organization websites, asthma guidelines, and medication information for key asthma drugs were assessed and informed a multidisciplinary working group, convened to identify common concepts and terminology used to define severe asthma. A patient-centered description of severe asthma and patient checklist were drafted based on working-group discussions and reviewed by an external behavioral scientist for patient understanding and relevance. These were tested using an online US/Canadian survey. RESULTS: The patient-centered description of severe asthma and patient checklist were reviewed and re-drafted by the authors. The text was simplified following the behavioral-scientist review. The survey (n = 153) included 105 patients with severe asthma. Of those with severe asthma, 92.2% of patients reported that the description was consistent with their experiences of severe asthma and 92.6% of patients reported that the PULSAR initiative would encourage them to visit their healthcare provider. CONCLUSION: A patient-centered description of severe asthma has been developed and tested using patients with severe asthma; this description will allow patients to assess whether they might have severe asthma and prompt them to visit their healthcare provider, if appropriate.

Item Type: Article
Faculty \ School: Faculty of Medicine and Health Sciences > Norwich Medical School
Depositing User: LivePure Connector
Date Deposited: 01 Aug 2019 13:30
Last Modified: 29 Jul 2020 23:47
URI: https://ueaeprints.uea.ac.uk/id/eprint/71862
DOI: 10.1007/s40271-019-00371-0

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