A patient-centered description of severe asthma: Patient Understanding Leading to assessment for a Severe Asthma Referral (PULSAR)

Winders, Tonya A., Wilson, Andrew M., Fletcher, Monica J., McGuinness, Anthony and Price, David B. (2019) A patient-centered description of severe asthma: Patient Understanding Leading to assessment for a Severe Asthma Referral (PULSAR). The Patient, 12 (5). 539–549. ISSN 1178-1653

Preview	PDF (Published_Version) - Published Version Available under License Creative Commons Attribution Non-commercial. Download (852kB) | Preview
Preview	PDF (Accepted_Manuscript) - Accepted Version Download (925kB) | Preview

Abstract

BACKGROUND: Although severe asthma can be life-threatening, many patients are unaware they have this condition. OBJECTIVES: Patient Understanding Leading to Assessment for a Severe Asthma Referral (PULSAR) is a novel, multidisciplinary working group aiming to develop and disseminate a global, patient-centered description of severe asthma to improve patient understanding of severe asthma and effect a change in patient behavior whereby patients are encouraged to visit their healthcare professional, when appropriate. METHODS: Current definitions from patient organization websites, asthma guidelines, and medication information for key asthma drugs were assessed and informed a multidisciplinary working group, convened to identify common concepts and terminology used to define severe asthma. A patient-centered description of severe asthma and patient checklist were drafted based on working-group discussions and reviewed by an external behavioral scientist for patient understanding and relevance. These were tested using an online US/Canadian survey. RESULTS: The patient-centered description of severe asthma and patient checklist were reviewed and re-drafted by the authors. The text was simplified following the behavioral-scientist review. The survey (n = 153) included 105 patients with severe asthma. Of those with severe asthma, 92.2% of patients reported that the description was consistent with their experiences of severe asthma and 92.6% of patients reported that the PULSAR initiative would encourage them to visit their healthcare provider. CONCLUSION: A patient-centered description of severe asthma has been developed and tested using patients with severe asthma; this description will allow patients to assess whether they might have severe asthma and prompt them to visit their healthcare provider, if appropriate.

Item Type:	Article
Faculty \ School:	Faculty of Medicine and Health Sciences > Norwich Medical School
UEA Research Groups:	Faculty of Medicine and Health Sciences > Research Groups > Respiratory and Airways Group Faculty of Medicine and Health Sciences > Research Groups > Cardiovascular and Metabolic Health Faculty of Medicine and Health Sciences > Research Centres > Population Health Faculty of Medicine and Health Sciences > Research Centres > Metabolic Health
Depositing User:	LivePure Connector
Date Deposited:	01 Aug 2019 13:30
Last Modified:	13 Nov 2023 17:46
URI:	https://ueaeprints.uea.ac.uk/id/eprint/71862
DOI:	10.1007/s40271-019-00371-0

Downloads

Actions (login required)

View Item