The impact of an epilepsy nurse competency framework on the costs of supporting adults with epilepsy and intellectual disability: Findings from the EpAID study

Pennington, Mark, Ring, Howard, Howlett, James, Smith, Christopher, Redley, Marcus ORCID: https://orcid.org/0000-0001-8866-7990, Murphy, Caroline, Hook, Roxanne, Platt, Adam, Gilbert, Nakita, Jones, Elizabeth, Kelly, Joanna, Pullen, Angela, Mander, Adrian P., Donaldson, Cam, Rowe, Simon, Wason, James and Irvine, Fiona (2019) The impact of an epilepsy nurse competency framework on the costs of supporting adults with epilepsy and intellectual disability: Findings from the EpAID study. Journal of Intellectual Disability Research, 63 (12). pp. 1391-1400. ISSN 0964-2633

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Abstract

Background : The development of a nurse-led approach to managing epilepsy in adults with an intellectual disability offers the potential of improved outcomes and lower costs of care. We undertook a cluster randomised trial to assess the impact on costs and outcomes of the provision of intellectual disability nurses working to a designated epilepsy nurse competency framework. Here, we report the impact of the intervention on costs. Method : Across the UK, 8 sites randomly allocated to the intervention recruited 184 participants, 9 sites allocated to treatment as usual recruited 128 participants. Cost and outcome data were collected mainly by telephone interview at baseline and after six months. Total costs at six months were compared from the perspective of health & social services, and society, with adjustments for pre-specified participant and cluster characteristics at baseline including costs. Missing data was imputed using Multiple Imputation. Uncertainty was quantified by bootstrapping. Results : The intervention was associated with lower per participant costs from a health & social services perspective of -£357 (2014/15 GBP) (95% CI -£986, £294) and from a societal perspective of -£631 (95% CI -£1,473, £181). Results were not sensitive to the exclusion of accommodation costs. Conclusions : Our findings suggest that the competency framework is unlikely to increase the cost of caring for people with epilepsy and intellectual disability and may reduce costs.

Item Type:	Article
Faculty \ School:	Faculty of Medicine and Health Sciences > School of Health Sciences
UEA Research Groups:	Faculty of Medicine and Health Sciences > Research Groups > Dementia & Complexity in Later Life
Depositing User:	LivePure Connector
Date Deposited:	25 Jul 2019 02:42
Last Modified:	29 Jan 2024 02:26
URI:	https://ueaeprints.uea.ac.uk/id/eprint/71799
DOI:	10.1111/jir.12679

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