Very old people dying – what would relatives like to have seen managed differently?

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Fleming, Jane, Evans, Robert, Scheibl, Fiona, Buck, Jackie ORCID: https://orcid.org/0000-0002-3598-2329, Barclay, Stephen, Farquhar, Morag ORCID: https://orcid.org/0000-0001-7991-7679 and Brayne, Carol and Cambridge City over-75s Cohort (CC75C) study (2016) Very old people dying – what would relatives like to have seen managed differently? BMJ Supportive & Palliative Care, 6 (3). p. 392. ISSN 2045-435X

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Abstract

Background and aim: As people live longer, dying in very old age is becoming more common. Palliative care is trying to adapt, from models that evolved predominantly from cancer care origins, to better meet the needs and priorities of frail older people. From one of the longest-running studies of ageing1 we have already described disability and cognition in the last year of life of a population-representative sample of men and women who died aged ≥852 and their end-of-life place of care transitions,3,4 showing most died away from home, with markedly higher dependency levels amongst people dying ≥90. From interviews with relatives after the study participants’ deaths, reportedly dying comfortably was associated with avoiding transitions, particularly with staying in care homes that had become home.5 Qualitative research in the same study found participants aged ≥95 were willing to discuss their end-of-life care preferences.6 We also sought to understand bereaved family members’ perspectives on their ‘older old’ relatives’ deaths. Methods: Analysis (framework approach) of n = 295 informant interview responses to an open question ‘If you had to live through the time of […participant’s…] final illness again, would you like anything to have been managed differently?’ regarding n = 290 deceased participants (mean age at death 90.2, SD 5.1 years) in the Cambridge City over-75s Cohort study, UK. Results: We will detail our findings that highlighted four key themes: communication (information-sharing, inter-personal/professional understanding), time (responsiveness, constraints), place (staying, moving, continuity) and care (in all settings). Discussion: Training and service integration implications for end-of-life care for society’s ‘oldest old’ will be discussed.

Item Type: Article
Uncontrolled Keywords: sdg 3 - good health and well-being ,/dk/atira/pure/sustainabledevelopmentgoals/good_health_and_well_being
Faculty \ School: Faculty of Medicine and Health Sciences > Norwich Medical School
Faculty of Medicine and Health Sciences > School of Health Sciences
UEA Research Groups: Faculty of Medicine and Health Sciences > Research Groups > Health Promotion
Faculty of Medicine and Health Sciences > Research Centres > Lifespan Health
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Depositing User: Pure Connector
Date Deposited: 31 Oct 2016 14:00
Last Modified: 09 May 2024 00:02
URI: https://ueaeprints.uea.ac.uk/id/eprint/61179
DOI: 10.1136/bmjspcare-2016-001204.22

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