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Farquhar, Morag 
ORCID: https://orcid.org/0000-0001-7991-7679, Ewing, Gail, Higginson, Irene J. and Booth, Sara
(2010)
The experience of using the SEIQoL-DW with patients with advanced chronic obstructive pulmonary disease (COPD): issues of process and outcome.
Quality of Life Research, 19 (5).
pp. 619-629.
ISSN 0962-9343
Abstract
Purpose: To report the experience of using the SEIQoL-DW for the measurement of quality of life with patients with advanced COPD and consider its feasibility, acceptability and appropriateness for a Phase III randomised controlled trial (RCT). Methods: The SEIQoL-DW was administered according to its instructions within a Phase II RCT 3–5 times per patient, across 13 patients and the process audio-recorded. Quantitative and qualitative criteria were used to assess feasibility, acceptability and appropriateness. Qualitative analysis of the transcripts and fieldwork notes was conducted using Framework Analysis. Results: The SEIQoL-DW steps (of identifying five quality of life cues, rating their functioning and importance) were completed at 48/51 interviews. However, some respondents were overwhelmed by the scripted introduction, experienced difficulty with cue identification, and focused only on certain types of cues (Step 1); some had difficulty interpreting and rating the concept of Step 2; and some had difficulty interpreting ‘importance’ and manipulating the SEIQoL-DW disc (Step 3). Conclusions: Patients with advanced COPD were able to complete the SEIQoL-DW but analysis of its administration identified practical and conceptual concerns which question the validity of the results obtained. Suggestions for the development of the SEIQoL-DW and future feasibility studies are given.
| Item Type: | Article |
|---|---|
| Uncontrolled Keywords: | quality of life,feasibility studies,outcome assessment (health care),chronic obstructive pulmonary disease,palliative care,validity of results |
| Faculty \ School: | Faculty of Medicine and Health Sciences > School of Health Sciences |
| UEA Research Groups: | Faculty of Medicine and Health Sciences > Research Groups > Health Promotion Faculty of Medicine and Health Sciences > Research Centres > Lifespan Health |
| Depositing User: | Pure Connector |
| Date Deposited: | 21 Oct 2016 16:00 |
| Last Modified: | 19 Oct 2023 01:49 |
| URI: | https://ueaeprints.uea.ac.uk/id/eprint/61040 |
| DOI: | 10.1007/s11136-010-9631-7 |
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