Social adaptation following intestinal stoma formation in people living at home: a longitudinal phenomenological study

Thorpe, Gabrielle ORCID: https://orcid.org/0000-0002-0639-4229 and McArthur, Maggie (2017) Social adaptation following intestinal stoma formation in people living at home: a longitudinal phenomenological study. Disability and Rehabilitation, 39 (22). pp. 2286-2293. ISSN 0963-8288

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Abstract

Purpose: Intestinal stoma formation profoundly changes the relationship between a person and their social world. The aim of this study was to understand the experience of living with a new stoma; this paper explores the theme ‘ disrupted social world,’ highlighting how stoma-forming surgery impacts on individuals’ abilities to participate and interact socially over time. Method: A longitudinal phenomenological approach. Twelve participants with a new stoma were recruited using purposeful sampling. Data were collected at three, nine and fifteen months following surgery through in-depth, unstructured interviews and analysed using a bespoke iterative framework. Results: Three categories were identified: participation in the social environment; interpersonal relationships: changes and challenges; and setting and achieving goals. Conclusions: Stoma-forming surgery changes the ways people relate to their social environment and connect with others, creating self-consciousness and impeding social confidence and autonomy. Understanding the social implications of stoma-forming surgery can help clinicians to provide responsive and appropriate support to facilitate social rehabilitation.

Item Type: Article
Uncontrolled Keywords: colorectal surgery,ostomy,uk,adjustment,social adaptation
Faculty \ School: Faculty of Medicine and Health Sciences > School of Health Sciences
UEA Research Groups: Faculty of Medicine and Health Sciences > Research Groups > Community and Family Health (former - to 2017)
Faculty of Medicine and Health Sciences > Research Groups > Rehabilitation
Related URLs:
Depositing User: Pure Connector
Date Deposited: 24 Sep 2016 00:29
Last Modified: 12 May 2023 00:16
URI: https://ueaeprints.uea.ac.uk/id/eprint/60065
DOI: 10.1080/09638288.2016.1226396

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