Treatment burden among people with chronic illness: what are consumer health organizations saying?

Sav, Adem, McMillan, Sara S., Kelly, Fiona, Kendall, Elizabeth, Whitty, Jennifer A. ORCID: https://orcid.org/0000-0002-5886-1933, King, Michelle A. and Wheeler, Amanda J. (2013) Treatment burden among people with chronic illness: what are consumer health organizations saying? Chronic Illness, 9 (3). pp. 220-232. ISSN 1742-3953

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Abstract

Objectives: To explore the perspectives of consumer health organizations about the burden of chronic illness and multiple treatment regimens experienced by the consumers they represent. Methods: In-depth interviews (n ¼ 15) were conducted with senior representatives from peak Australian consumer health organizations representing diabetes, asthma, cardiovascular disease, cancer, musculoskeletal illness and mental health. Results: Medication burden, which included aspects such as multiple medications, side effects, stigma and adverse events resulting from medication use, emerged as the most significant and prevalent theme. Carer burden and the negative impact of financial burden was widely discussed, particularly for low-income earners with claims that these consumers were forced to prioritise medications according to how effective they perceived them to be. Time taken to learn about treatment, administer, and monitor or travel to obtain treatment also emerged as being burdensome, however, difficulty accessing treatment was considered to be particularly burdensome. The disjointed nature of care among healthcare services was thought to create a sense of confusion and distress. Discussion: Many of the issues discussed by participants corroborated existing research, underscoring the complementary provider, and advocacy role of these organisations in mitigating treatment burden for people with chronic illness.

Item Type:	Article
Uncontrolled Keywords:	treatment burden,consumer health organization,chronic illness,sdg 3 - good health and well-being ,/dk/atira/pure/sustainabledevelopmentgoals/good_health_and_well_being
Faculty \ School:	Faculty of Medicine and Health Sciences > Norwich Medical School
UEA Research Groups:	Faculty of Medicine and Health Sciences > Research Groups > Respiratory and Airways Group Faculty of Medicine and Health Sciences > Research Groups > Public Health and Health Services Research (former - to 2023) Faculty of Medicine and Health Sciences > Research Groups > Health Services and Primary Care Faculty of Medicine and Health Sciences > Research Groups > Health Economics
Depositing User:	Pure Connector
Date Deposited:	27 Apr 2016 13:01
Last Modified:	22 Oct 2022 01:05
URI:	https://ueaeprints.uea.ac.uk/id/eprint/58431
DOI:	10.1177/1742395312463411

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