Burden of treatment for chronic illness: a concept analysis and review of the literature

Sav, Adem, King, Michelle A., Whitty, Jennifer A. ORCID: https://orcid.org/0000-0002-5886-1933, Kendall, Elizabeth, Mcmillan, Sara S., Kelly, Fiona, Hunter, Beth and Wheeler, Amanda J. (2015) Burden of treatment for chronic illness: a concept analysis and review of the literature. Health Expectations, 18 (3). pp. 312-324. ISSN 1369-6513

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Abstract

Context Treatment burden, the burden associated with the treatment and management of chronic illness, has not yet been well articulated. Objective Using Rodgers' (1989, Journal of Advanced Nursing, 14, 330–335) method of concept analysis, this review describes the ways in which treatment burden has been conceptualized to define the concept and to develop a framework for understanding its attributes, antecedents and consequences. Methods Leading databases were searched electronically between the years 2002 and 2011. To ensure the review focused on actual observations of the concept of interest, articles that did not measure treatment burden (either qualitatively or quantitatively) were excluded. An inductive approach was used to identify themes related to the concept of treatment burden. Main results Thirty articles, identified from 1557 abstracts, were included in the review. The attributes of treatment burden include burden as a dynamic process, as a multidimensional concept, and comprising of both subjective and objective elements. Prominent predisposing factors (antecedents) include the person's age and gender, their family circumstances, possible comorbidity, high use of medications, characteristics of treatment and their relationship with their health-care provider. The most dominant consequences are poor health and well-being, non-adherence to treatment, ineffective resource use and burden on significant others. Furthermore, many of these consequences can also become antecedents, reflecting the cyclic and dynamic nature of treatment burden. Conclusion The findings underscore the need for researchers and health-care professionals to engage in collaborative discussions and make cooperative efforts to help alleviate treatment burden and tailor treatment regimens to the realities of people's daily lives.

Item Type:	Article
Uncontrolled Keywords:	chronic illness,concept analysis,health professional,medication burden,treatment burden
Faculty \ School:	Faculty of Medicine and Health Sciences > Norwich Medical School
UEA Research Groups:	Faculty of Medicine and Health Sciences > Research Groups > Health Economics Faculty of Medicine and Health Sciences > Research Groups > Respiratory and Airways Group Faculty of Medicine and Health Sciences > Research Groups > Health Services and Primary Care Faculty of Medicine and Health Sciences > Research Groups > Public Health and Health Services Research (former - to 2023)
Depositing User:	Pure Connector
Date Deposited:	26 Apr 2016 12:01
Last Modified:	21 Oct 2022 04:35
URI:	https://ueaeprints.uea.ac.uk/id/eprint/58383
DOI:	10.1111/hex.12046

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