Older care-home residents as collaborators or advisors in research: a systematic review

Backhouse, Tamara ORCID: https://orcid.org/0000-0001-8194-4174, Kenkmann, Andrea, Lane, Kathleen, Penhale, Bridget ORCID: https://orcid.org/0000-0002-8487-0606, Poland, Fiona ORCID: https://orcid.org/0000-0003-0003-6911 and Killett, Anne ORCID: https://orcid.org/0000-0003-4080-8365 (2016) Older care-home residents as collaborators or advisors in research: a systematic review. Age and Ageing, 45 (3). pp. 337-345. ISSN 0002-0729

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Abstract

Background: patient and public involvement (PPI) in research can enhance its relevance. Older care-home residents are often not involved in research processes even when studies are care-home focused. Objective: to conduct a systematic review to find out to what extent and how older care-home residents have been involved in research as collaborators or advisors. Methods: a systematic literature search of 12 databases, covering the period from 1990-September 2014 was conducted. A lateral search was also carried out. Standardised inclusion criteria were used and checked independently by two researchers. Results: 19 reports and papers were identified relating to 11 different studies. Care-home residents had been involved in the research process in multiple ways. Two key themes were identified: (i) the differences in residents’ involvement in small-scale and large-scale studies, (ii) the barriers to and facilitators of involvement. Conclusions: small-scale studies involved residents as collaborators in participatory action research, whereas larger studies involved residents as consultants in advisory roles. There are multiple facilitators of and barriers to involving residents as PPI members. The reporting of PPI varies. While it is difficult to evaluate the impact of involving care-home residents on the research outcomes, impact has been demonstrated from more inclusive research processes with care-home residents. The review shows that older care-home residents can be successfully involved in the research process.

Item Type:	Article
Additional Information:	© The Author 2016. Published by Oxford University Press on behalf of the British Geriatrics Society. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited
Uncontrolled Keywords:	patient and public involvement,care home,older resident,ppi,research
Faculty \ School:	Faculty of Medicine and Health Sciences > School of Health Sciences Faculty of Medicine and Health Sciences > Norwich Medical School
UEA Research Groups:	Faculty of Medicine and Health Sciences > Research Groups > Dementia & Complexity in Later Life Faculty of Medicine and Health Sciences > Research Groups > Epidemiology and Public Health Faculty of Medicine and Health Sciences > Research Groups > Health Promotion Faculty of Medicine and Health Sciences > Research Groups > Public Health and Health Services Research (former - to 2023) Faculty of Medicine and Health Sciences > Research Centres > Lifespan Health
Depositing User:	Pure Connector
Date Deposited:	22 Mar 2016 09:18
Last Modified:	19 Oct 2023 01:34
URI:	https://ueaeprints.uea.ac.uk/id/eprint/57702
DOI:	10.1093/ageing/afv201

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