Enhancing caregivers’ understanding of dementia and tailoring activities in frontotemporal dementia:two case studies

O'Connor, Claire M, Clemson, Lindy, Brodaty, Henry, Gitlin, Laura N, Piguet, Olivier and Mioshi, Eneida (2016) Enhancing caregivers’ understanding of dementia and tailoring activities in frontotemporal dementia:two case studies. Disability and Rehabilitation, 38 (7). pp. 704-714. ISSN 0963-8288

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Abstract

PURPOSE: To describe the intervention process and results of the Tailored Activities Program (TAP) in two people diagnosed with Frontotemporal Dementia (FTD). METHOD: TAP is an occupational therapy (OT) community-based intervention program that prescribes personalised activities to reduce difficult behaviours of dementia. The OT works with carers over a 4-month period (assessment, activity prescription, and generalisation of strategies). Study measures were collected (blind researcher) pre- and post- intervention: cognition, functional disability, behavioural symptoms, and Caregiver Confidence and Vigilance. RESULTS: A 51-year-old woman with behavioural-variant FTD could consistently engage in more activities post-intervention, with scores indicating improvements to behaviour, function, and caregiver confidence. A 63-year-old man with semantic variant FTD engaged well in the prescribed activities, with scores reflecting reduced carer distress regarding challenging behaviours and improved caregiver vigilance. CONCLUSIONS: TAP is efficacious in FTD, allowing for differences in approach for FTD subtype, where behavioural symptoms are very severe and pervasive.

Item Type: Article
Uncontrolled Keywords: frontotemporal dementia,dementia,non-pharmacological intervention,occupational therapy,tailored activities program,caregivers
Faculty \ School: Faculty of Medicine and Health Sciences > School of Health Sciences
UEA Research Groups: Faculty of Medicine and Health Sciences > Research Groups > Dementia & Complexity in Later Life
Faculty of Medicine and Health Sciences > Research Centres > Lifespan Health
Depositing User: Pure Connector
Date Deposited: 19 Jan 2016 14:00
Last Modified: 19 Oct 2023 01:37
URI: https://ueaeprints.uea.ac.uk/id/eprint/56681
DOI: 10.3109/09638288.2015.1055375

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