How may action research help patients awaiting colorectal cancer surgery to regain a sense of control over their lives?

Gregory, Sheila, Poland, Fiona, Spalding, Nicola, Sargen, Kevin, McCulloch, Jane and Vicary, Penny (2011) How may action research help patients awaiting colorectal cancer surgery to regain a sense of control over their lives? In: British Sociological Association Medical Sociology Group Annual Conference 2011, 2011-09-14 - 2011-09-16.

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Abstract

How may action research help patients awaiting colorectal cancer surgery to regain a sense of control over their lives? Gregory S, Poland F, Spalding N, Sargen K, McCulloch J, Vicary P Abstract The educational process within the colorectal unit varies widely according to patient diagnosis, proposed surgery, and further treatments, and is provided by diverse healthcare professionals along their care pathway. Relatively few preoperative education services for colorectal patients have been formally evaluated. An action research-based evaluation of a preoperative education service examined whether and how patients and carers might see the service as beneficial and relevant and what they might identify as potential improvements. An action research study was carried out using three cycles of planning, acting, observing and reflecting on changes. Themes relevant to informing changes in education provision were taken to a healthcare staff decision-making meeting to inform the next action cycle. Themes identified in patient, carer and staff views and suggestions focused on potential ways they could play a more active role in preparing for surgery and enhancing their own recovery to self-manage their lives. These included patient journey timescales, stoma management, normalising bodily changes, dietary changes and resuming normal occupations. Identifying information which was meaningful to their lifeworlds was seen as critical for enabling patients to regain a sense of control after major disruption to their biographies and sense of self following a diagnosis of cancer requiring colorectal surgery. Action research provided ways to represent and integrate these within clinical practice in the innovative development (including through poetic narratives), content, timing and communication of preoperative education. This abstract outlines independent research commissioned by the National Institute for Health Research (NIHR) under the RfPB programme Ref: PB-PG-1207-13321. The views expressed are those of the authors and not necessarily those of the NHS, the NIHR or the Department of Health.

Item Type: Conference or Workshop Item (Paper)
Faculty \ School: Faculty of Medicine and Health Sciences > Allied Health Professions
Faculty of Medicine and Health Sciences > Norwich Medical School
Depositing User: Sheila Gregory
Date Deposited: 05 Nov 2012 15:58
Last Modified: 08 Jun 2020 23:27
URI: https://ueaeprints.uea.ac.uk/id/eprint/39079
DOI:

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