Sleep hygiene education and children with developmental disabilities: Findings from a co-design study

Sutton, Julie E., Huws, Jaci C. and Burton, Christopher R. (2020) Sleep hygiene education and children with developmental disabilities: Findings from a co-design study. Journal of Intellectual Disabilities, 24 (4). pp. 522-542. ISSN 1744-6295

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Abstract

This qualitative study develops a programme theory demonstrating the complexity embedded in sleep hygiene education (SHE) as an intervention to improve sleep problems in children with developmental disabilities. In co-design workshops, eight parents and six sleep practitioners deliberated themes developed from findings of an earlier exploratory study of stakeholder perceptions of SHE. A SHE tool underpinned by programme theory was developed evidenced by mid-range theories of change. Analytical themes were developed to explain the programme theory and the complexities of a successful SHE intervention: the need to legitimize children’s sleep problems and consider the nature of customization, knowledge sharing, health expectation and impact of sleep service rationing and gaming strategies on implementation success. Policy and practice implications include a need to raise the public profile of children’s sleep problems and promote parental involvement in intervention implementation. Further research is needed to test out this theory-driven framework for evaluating SHE.

Item Type:	Article
Additional Information:	Publisher Copyright: © The Author(s) 2018.
Uncontrolled Keywords:	children,developmental disabilities,experience-based co-design,programme theory,sleep hygiene education,health professions (miscellaneous),psychiatry and mental health,sdg 3 - good health and well-being ,/dk/atira/pure/subjectarea/asjc/3600/3601
Faculty \ School:	Faculty of Medicine and Health Sciences > School of Health Sciences
UEA Research Groups:	Faculty of Medicine and Health Sciences > Research Centres > Public Health
Related URLs:	http://www.scopus.com/inward/record.url?...
Depositing User:	LivePure Connector
Date Deposited:	14 Nov 2025 17:30
Last Modified:	17 Nov 2025 01:27
URI:	https://ueaeprints.uea.ac.uk/id/eprint/101003
DOI:	10.1177/1744629518818950

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