Spiritual support for people affected by dementia: A scoping review

Wolverson, Emma, Backhouse, Tamara, Burnand, Alice, Eriksen, Siren, Fonseca de Paiva, Andrea, Harrison Dening, Karen, Mabire, Jean-Bernard, Sabatini, Serena and van der Steen, Jenny T. and On behalf of The INTERDEM Taskforce on Palliative and End of Life Care (2025) Spiritual support for people affected by dementia: A scoping review. Dementia-International Journal of Social Research and Practice. ISSN 1471-3012

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Abstract

As a life-limiting illness, dementia requires a holistic approach to care, where spiritual support plays a crucial role in helping individuals and their caregivers find meaning and solace. Our aim was to systematically map the research conducted on psychosocial interventions developed to provide spiritual support for people living with dementia and their caregivers from diagnosis and across the disease trajectory. A scoping review was conducted to explore the breadth of research on ‘spiritual support’ in dementia care, encompassing interventions, service delivery models, programs, toolkits, approaches, and activities. Electronic databases (MEDLINE (Pubmed), CINAHL, PsycINFO, EMBASE, Web of Science and The Cochrane Library) from inception until February 2025. References of included papers were hand searched. The quality of studies was assessed using the Mixed Methods Appraisal Tool. The findings were interpreted jointly with seven people with dementia and six family caregivers. Twelve papers met the eligibility criteria, reporting on interventions for people with dementia, caregivers, staff skills, care environments, and inclusive worship. Most studies were exploratory, with only one RCT. Studies originated from the USA (n = 4), Europe (n = 4), Australia (n = 2), Taiwan (n = 1), and Canada (n = 1). Eight focused on community settings, three on residential care, and one included both. Six studies involved people with dementia: four with mild to moderate, one with moderate to advanced, and one with mixed severity. Outcomes were inconsistent and there was a lack of longitudinal observational studies to track changes over time. Spiritual support should be personalised and multifaceted, incorporating creative activities and tailored interventions that reflect individual preferences and diverse backgrounds. Future research should employ longitudinal observational and intervention designs.

Item Type:	Article
Additional Information:	Data availability statement: The data supporting the findings of this scoping review are available within the article and its supplementary materials. Additional data may be available from the corresponding author upon reasonable request.
Faculty \ School:	Faculty of Medicine and Health Sciences > School of Health Sciences
UEA Research Groups:	Faculty of Medicine and Health Sciences > Research Centres > Mental Health and Social Care (fka Lifespan Health) Faculty of Medicine and Health Sciences > Research Groups > Dementia & Complexity in Later Life
Depositing User:	LivePure Connector
Date Deposited:	10 Sep 2025 11:30
Last Modified:	14 Sep 2025 06:30
URI:	https://ueaeprints.uea.ac.uk/id/eprint/100362
DOI:	10.1177/14713012251377812

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