How parents of young adults with intellectual disability make sense of their experiences of transitioning from learning disability CAMHS to learning disability adult health service: An IPA study

Sotonwa, Abisoye, Meiser-Stedman, Richard and Willmoth, Corrina (2025) How parents of young adults with intellectual disability make sense of their experiences of transitioning from learning disability CAMHS to learning disability adult health service: An IPA study. Journal of Intellectual Disabilities. ISSN 1744-6295

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Abstract

Whilst existing literature describes the experience of transitioning in mainstream mental health services, little is known about specialist learning disability services. The following study aimed to explore how parents of young adults, aged 17 to 21, with intellectual disability make sense of their experiences of transitioning from learning disability Child and Adolescent Mental Health Service (CAMHS) to adult community learning disability teams. Semi-structured interviews were conducted with four parents of individuals diagnosed with a learning disability who were receiving care in the adult community learning disability team. Transcripts were analysed using interpretative phenomenological analysis. Three group experiential themes emerged: impact of transition on sense of control, making sense of challenges experienced, and wishing for a better service. The findings highlighted experiences of parents transitioning both through specialist health and social care services. Future research should seek to understand the impact of race on transition and experience of service.

Item Type:	Article
Additional Information:	Data availability statement: The data that underlies this research are openly available and accessible on the University of East Anglia Digital Repository.
Faculty \ School:	Faculty of Medicine and Health Sciences > Norwich Medical School
UEA Research Groups:	Faculty of Medicine and Health Sciences > Research Centres > Mental Health and Social Care (fka Lifespan Health) Faculty of Medicine and Health Sciences > Research Groups > Mental Health
Depositing User:	LivePure Connector
Date Deposited:	13 Aug 2025 11:30
Last Modified:	31 Aug 2025 06:30
URI:	https://ueaeprints.uea.ac.uk/id/eprint/100137
DOI:	10.1177/17446295251369599

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