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ToolsGibson, Grant, Moreira, Tiago, Pickersgill, Martyn, Killen, Alison, Fernyhough, Charles, Oliver, Emily, Jamie, Kimberley, Van Hees, Susan, Backhouse, Tamara, Soilemezi, Dia and Handley, Melanie (2025) Widening the scope of social science research on the dementias: The importance of Lewy Body Dementia. p. 368.
Full text not available from this repository. (Request a copy)Abstract
Lewy Body Dementia (LBD) is an umbrella diagnostic label which includes both Dementia with Lewy Bodies (DLB) and Parkinson’s Disease Dementia (PDD). Research on LBD has overwhelmingly adopted a biomedical, clinical perspective, while the field of dementia studies has often orientated towards singular, monolithic understandings of dementia. Accordingly, diagnostic categories, sociotechnical constitution, or lived experience of dementia subtypes of have not been adequately disaggregated and conceptualised. The heterogeneity of LBD’s aetiology, presentation, and management - located across historically constituted medical specialities underscore the need to build, critique, and extend conventional social sciences approaches to neurodegenerative illness and health, with the aim of ultimately improving health and care. Here we review existing social science literature regarding LBD, and propose an agenda for interdisciplinary research on the condition. First, we map the social arena of research on LBD and its relationship with existing Dementia and Parkinson’s Disease research. Second, we examine the clinical and service barriers and facilitators to diagnosis and management of LBD. Third, we analyse the role lived experience might play in informing social science research on LBD. We conclude by highlighting 10 key priorities around which a social scientific, and in particular a sociologically-informed, approach to LBD might coalesce.
| Item Type: | Article |
|---|---|
| Additional Information: | Citation: Gibson G, Moreira T, Pickersgill M et al. Widening the scope of social science research on the dementias: the importance of Lewy Body Dementia [version 1; peer review: awaiting peer review]. Wellcome Open Res 2025, 10:368 (https://doi.org/10.12688/wellcomeopenres.24604.1) Data availability statement: No data are associated with this article. Funding information: This work was supported by Wellcome [106612] [209519]; Foundation for the Sociology of Health and Illness [RF2000156]; AHRC [AH/W011417/1] and ESRC [ES/S013873/1] [ES/T014164/1]. |
| Faculty \ School: | Faculty of Medicine and Health Sciences > School of Health Sciences |
| UEA Research Groups: | Faculty of Medicine and Health Sciences > Research Centres > Mental Health and Social Care (fka Lifespan Health) Faculty of Medicine and Health Sciences > Research Groups > Dementia & Complexity in Later Life |
| Related URLs: | |
| Depositing User: | LivePure Connector |
| Date Deposited: | 06 Aug 2025 13:30 |
| Last Modified: | 06 Aug 2025 13:30 |
| URI: | https://ueaeprints.uea.ac.uk/id/eprint/100067 |
| DOI: | 10.12688/wellcomeopenres.24604.1 |
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