The experience of using the SEIQoL-DW with patients with advanced chronic obstructive pulmonary disease (COPD): issues of process and outcome

Farquhar, Morag, Ewing, Gail, Higginson, Irene J. and Booth, Sara (2010) The experience of using the SEIQoL-DW with patients with advanced chronic obstructive pulmonary disease (COPD): issues of process and outcome. Quality of Life Research, 19 (5). pp. 619-629. ISSN 0962-9343

Full text not available from this repository. (Request a copy)

Abstract

Purpose: To report the experience of using the SEIQoL-DW for the measurement of quality of life with patients with advanced COPD and consider its feasibility, acceptability and appropriateness for a Phase III randomised controlled trial (RCT). Methods: The SEIQoL-DW was administered according to its instructions within a Phase II RCT 3–5 times per patient, across 13 patients and the process audio-recorded. Quantitative and qualitative criteria were used to assess feasibility, acceptability and appropriateness. Qualitative analysis of the transcripts and fieldwork notes was conducted using Framework Analysis. Results: The SEIQoL-DW steps (of identifying five quality of life cues, rating their functioning and importance) were completed at 48/51 interviews. However, some respondents were overwhelmed by the scripted introduction, experienced difficulty with cue identification, and focused only on certain types of cues (Step 1); some had difficulty interpreting and rating the concept of Step 2; and some had difficulty interpreting ‘importance’ and manipulating the SEIQoL-DW disc (Step 3). Conclusions: Patients with advanced COPD were able to complete the SEIQoL-DW but analysis of its administration identified practical and conceptual concerns which question the validity of the results obtained. Suggestions for the development of the SEIQoL-DW and future feasibility studies are given.

Item Type: Article
Uncontrolled Keywords: quality of life,feasibility studies,outcome assessment (health care),chronic obstructive pulmonary disease,palliative care,validity of results
Faculty \ School: Faculty of Medicine and Health Sciences > School of Health Sciences
Related URLs:
Depositing User: Pure Connector
Date Deposited: 21 Oct 2016 17:00
Last Modified: 25 Jul 2018 12:49
URI: https://ueaeprints.uea.ac.uk/id/eprint/61040
DOI: 10.1007/s11136-010-9631-7

Actions (login required)

View Item