Rehabilitation services for young-onset dementias: examples from high and low-middle-income countries

Suárez-González, Aida, Savage, Sharon A., Alladi, Suvarna, Amaral-Carvalho, Viviane, Arshad, Faheem, Camino, Julieta ORCID:, Caramelli, Paulo, Comas-Herrera, Adelina, Cook, Julia, Cooper, Claudia, García Díaz, Laura, Grasso, Stephanie M., Jokel, Regina, Lavoie, Monica, León, Tomás, Priya, Thomas, Ramos Franco, Teresita, Taylor-Rubin, Cathleen, Townsend, Rosemary, Thöne-Otto, Angelika, Slachevsky, Andrea, Volkmer, Anna, Weidner, Wendy and O'Connor, Claire M. (2024) Rehabilitation services for young-onset dementias: examples from high and low-middle-income countries. International Journal of Environmental Research and Public Health, 21 (6). ISSN 1660-4601

[thumbnail of ijerph-21-00790-v2]
PDF (ijerph-21-00790-v2) - Published Version
Available under License Creative Commons Attribution.

Download (419kB) | Preview


The WHO Dementia Global Action Plan states that rehabilitation services for dementia are required to promote health, reduce disability, and maintain quality of life for those living with dementia. Current services, however, are scarce, particularly for people with young-onset dementia (YOD). This article, written by an international group of multidisciplinary dementia specialists, offers a three-part overview to promote the development of rehabilitation services for YOD. Firstly, we provide a synthesis of knowledge on current evidence-based rehabilitative therapies for early-onset Alzheimer’s disease (EOAD), behavioural variant frontotemporal dementia (bvFTD), primary progressive aphasia (PPA), and posterior cortical atrophy (PCA). Secondly, we discuss the characteristics of rehabilitation services for YOD, providing examples across three continents for how these services can be embedded in existing settings and the different roles of the rehabilitation multidisciplinary team. Lastly, we conclude by highlighting the potential of telehealth in making rehabilitation services more accessible for people with YOD. Overall, with this paper, we aim to encourage clinical leads to begin introducing at least some rehabilitation into their services, leveraging existing resources and finding support in the collective expertise of the broader multidisciplinary dementia professional community.

Item Type: Article
Additional Information: Funding Information: A.S.-G. is supported by two grants from the National Institute for Health and Care Research (COV-LT2-0014 and NIHR203680) and UK Research and Innovation (ES/Y007484/1). C.M.O. is supported by a Dementia Centre for Research Collaboration Post-Doctoral Fellowship. P.C. is supported by CNPq, Brazil (bolsa de produtividade em pesquisa). R.J. is supported by Estelle & Carl Epstein Family philanthropic funds. S.M.G. is supported by the National Institute on Aging/National Institute of Health grant number R01AG080470. A.V. is funded by an NIHR Advanced Fellowship NIHR302240. A.S. is supported by ANID (FONDAP 15150012; Fondecyt 1231839; FONDEF 22I10251 and PIA Anillos ACT210096). A.S. and T.R. are partially supported by the Multi-Partner-Consortium to expand dementia research in Latin America, which is supported by the National Institutes of Health, the National Institutes of Aging (R01 AG057234; R01AG075775, R01AG21051, and CARDS-NIH), the Alzheimer\u2019s Association (SG-20-725707), the Fogarty International Center and Rainwater Charitable Foundation\u2019s Tau Consortium, the Bluefield Project to Cure Frontotemporal Dementia, and the Global Brain Health Institute (GBHI). The contents of this publication are solely the responsibility of the authors and do not represent the official views of these institutions. C.C. is supported by the Dementia and Neurodegenerative Disease Policy Research Unit\u2013Queen Mary. W.W. works for Alzheimer\u2019s Disease International, which is supported by corporate partners, a list of which can be found here: (accessed 8 June 2024).
Uncontrolled Keywords: alzheimer,frontotemporal dementia,posterior cortical atrophy,primary progressive aphasia,rehabilitation,young-onset dementia,pollution,public health, environmental and occupational health,health, toxicology and mutagenesis ,/dk/atira/pure/subjectarea/asjc/2300/2310
Faculty \ School: Faculty of Medicine and Health Sciences > School of Health Sciences
Related URLs:
Depositing User: LivePure Connector
Date Deposited: 25 Jun 2024 10:30
Last Modified: 12 Jul 2024 08:31
DOI: 10.3390/ijerph21060790


Downloads per month over past year

Actions (login required)

View Item View Item