Exploring Family Experience of Acquired Brain Injury in Childhood: Parent and Child Perspectives

Ryan, Hannah (2023) Exploring Family Experience of Acquired Brain Injury in Childhood: Parent and Child Perspectives. Doctoral thesis, University of East Anglia.

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Abstract

The purpose of this thesis is to explore the lived experience of children and their parents after a child’s Acquired Brain Injury (ABI). A systematic review was conducted which synthesised results from 15 qualitative studies involving children’s perspectives of their ABI. Results revealed three core areas of importance for children when describing their experiences: ‘Sense of Self’, ‘Relationships’ and ‘Coping and Support’. These contained further subthemes, including: facing disability; who am I; social world; change in family dynamics; reframing and acceptance; being understood. An empirical paper explored narratives of parents of children with ABI. Findings suggested that parents made sense of life after ABI using two narrative threads: ‘trauma’ and ‘journey’. Both narrative threads represented continuous, dynamic processes which require personal changes and changed perspectives. Findings from both the systematic review and empirical study are critically evaluated in a final discussion chapter.

Item Type:	Thesis (Doctoral)
Faculty \ School:	Faculty of Medicine and Health Sciences > Norwich Medical School
Depositing User:	Chris White
Date Deposited:	09 Nov 2023 09:12
Last Modified:	09 Nov 2023 09:12
URI:	https://ueaeprints.uea.ac.uk/id/eprint/93612
DOI:

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