Perspectives of informal caregivers who support people following hip fracture surgery: a qualitative study embedded within the HIP HELPER feasibility trial

Welsh, Allie ORCID: https://orcid.org/0000-0001-8278-6673, Hanson, Sarah ORCID: https://orcid.org/0000-0003-4751-8248, Pfeiffer, Klaus, Khoury, Reema, Clark, Allan ORCID: https://orcid.org/0000-0003-2965-8941, Ashford, Polly-Anna, Hopewell, Sally, Logan, Pip, Crotty, Maria, Costa, Matthew, Lamb, Sallie and Smith, Toby ORCID: https://orcid.org/0000-0003-1673-2954 and on behalf of the HIP HELPER Study Collaborators (2023) Perspectives of informal caregivers who support people following hip fracture surgery: a qualitative study embedded within the HIP HELPER feasibility trial. BMJ Open, 13 (11). ISSN 2044-6055

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Abstract

OBJECTIVES: This study aims to illuminate the perspectives of informal caregivers who support people following hip fracture surgery. DESIGN: A qualitative study embedded within a now completed multicentre, feasibility randomised controlled trial (HIP HELPER). SETTING: Five English National Health Service hospitals. PARTICIPANTS: We interviewed 20 participants (10 informal caregivers and 10 people with hip fracture), following hip fracture surgery. This included one male and nine females who experienced a hip fracture; and seven male and three female informal caregivers. The median age was 72.5 years (range: 65-96 years), 71.0 years (range: 43-81 years) for people with hip fracture and informal caregivers, respectively. METHODS: Semistructured, virtual interviews were undertaken between November 2021 and March 2022, with caregiver dyads (person with hip fracture and their informal caregiver). Data were analysed thematically. FINDINGS: We identified two main themes: expectations of the informal caregiver role and reality of being an informal caregiver; and subthemes: expectations of care and services; responsibility and advocacy; profile of people with hip fracture; decision to be a caregiver; transition from hospital to home. CONCLUSION: Findings suggest informal caregivers do not feel empowered to advocate for a person's recovery or navigate the care system, leading to increased and unnecessary stress, anxiety and frustration when supporting the person with hip fracture. We suggest that a tailored information giving on the recovery pathway, which is responsive to the caregiving population (ie, considering the needs of male, younger and more active informal caregivers and people with hip fracture) would smooth the transition from hospital to home. TRIAL REGISTRATION NUMBER: ISRCTN13270387.Cite Now.

Item Type: Article
Additional Information: Data availability statement: The data that support the findings of this study are available from the corresponding author (AW) upon reasonable request. This includes access to the full protocol, and anonymised participant-level dataset. Funding Statement: This project is funded by the National Institute for Health and Care Research (NIHR) under its Research for Patient Benefit (RfPB) Programme (Grant Reference Number NIHR200731). MCo and SHo role in this study was supported by the National Institute for Health and Care Research Oxford Biomedical Research Centre. SEL role in this study was supported by the National Institute for Health and Care Research Exeter Biomedical Research Centre. The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care.
Uncontrolled Keywords: hip fracture,caregiver,qualitative,interviews,recovery,rehabilitation,carer,qualitative research,rehabilitation medicine,hip,medicine(all),2* ,/dk/atira/pure/subjectarea/asjc/2700
Faculty \ School: Faculty of Social Sciences > School of Education and Lifelong Learning
Faculty of Medicine and Health Sciences > School of Health Sciences
Faculty of Medicine and Health Sciences > Norwich Medical School
UEA Research Groups: Faculty of Medicine and Health Sciences > Research Centres > Norwich Institute for Healthy Aging
Faculty of Medicine and Health Sciences > Research Groups > Health Promotion
Faculty of Medicine and Health Sciences > Research Centres > Lifespan Health
Faculty of Medicine and Health Sciences > Research Groups > Public Health and Health Services Research (former - to 2023)
Faculty of Medicine and Health Sciences > Research Groups > Norwich Clinical Trials Unit
Faculty of Medicine and Health Sciences > Research Groups > Health Services and Primary Care
Faculty of Medicine and Health Sciences > Research Groups > Epidemiology and Public Health
Faculty of Medicine and Health Sciences > Research Centres > Population Health
Faculty of Science > Research Groups > Norwich Epidemiology Centre
Faculty of Medicine and Health Sciences > Research Groups > Norwich Epidemiology Centre
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Depositing User: LivePure Connector
Date Deposited: 07 Oct 2023 01:25
Last Modified: 28 Nov 2023 02:57
URI: https://ueaeprints.uea.ac.uk/id/eprint/93171
DOI: 10.1136/bmjopen-2023-074095

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