Commentary on patient advocacy and research priorities in olfactory and gustatory disorders

Garden, E. M., Espehana, A., Boak, D., Gadi, N. and Philpott, C. M. ORCID: (2023) Commentary on patient advocacy and research priorities in olfactory and gustatory disorders. Current Otorhinolaryngology Reports, 11. pp. 1-8. ISSN 2167-583X

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Purpose of Review: This paper outlines the challenges faced by people with smell and taste disorders (SATDs) and why patient advocacy is crucial in addressing these. It includes recent findings in identifying research priorities in SATDs. Recent Findings: A recent Priority Setting Partnership (PSP) conducted with the James Lind Alliance (JLA) has been completed and the top 10 research priorities in SATDs determined. Fifth Sense, a UK charity, has been working alongside patient and healthcare professions to drive awareness, education and research in this area. Summary: Following the completion of the PSP, Fifth Sense have launched six Research Hubs to take forward these priorities and engage with researchers to carry out and deliver research that directly answers the questions raised by the results of the PSP. The six Research Hubs cover a different aspect of smell and taste disorders. Each hub is led by clinicians and researchers recognised for their expertise in their field, who will act as champions for their respective hub.

Item Type: Article
Additional Information: Funding Information: Fifth Sense funded the Priority Setting Partnership using part of its grant from the National Lottery Community Fund, but there is no conflict of interest with this paper. Publisher Copyright: © 2023, The Author(s).
Uncontrolled Keywords: advocacy,anosmia,hyposmia,olfactory disorders,parosmia,phantosmia,surgery,immunology and allergy,otorhinolaryngology,clinical neurology ,/dk/atira/pure/subjectarea/asjc/2700/2746
Faculty \ School: Faculty of Medicine and Health Sciences > Norwich Medical School
UEA Research Groups: Faculty of Medicine and Health Sciences > Research Groups > Respiratory and Airways Group
Faculty of Medicine and Health Sciences > Research Centres > Lifespan Health
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Depositing User: LivePure Connector
Date Deposited: 13 Mar 2023 12:30
Last Modified: 25 Mar 2024 10:30
DOI: 10.1007/s40136-023-00444-7

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