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Burton, Jennifer Kirsty, Wolters, Arne Timon, Towers, Ann-Marie, Jones, Liz, Meyer, Julienne, Gordon, Adam Lee, Irvine, Lisa, Hanratty, Barbara, Spilsbury, Karen, Peryer, Guy 
ORCID: https://orcid.org/0000-0003-0425-6911, Rand, Stacey, Killett, Anne ORCID: https://orcid.org/0000-0003-4080-8365, Akdur, Gizdem, Allan, Stephen, Biswas, Priti and Goodman, Claire
(2022)
Developing a minimum data set for older adult care homes in the UK: exploring the concept and defining early core principles.
The Lancet: Healthy Longevity, 3 (3).
e186-e193.
ISSN 2666-7568
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Abstract
Reforms to social-care in response to the COVID-19 pandemic, in the UK and internationally, place data at the heart of proposed innovations and solutions. The principles are not well established of what constitutes core, or minimum, data to support care home residents. Often, what is included, privileges data on resident health over day-to-day care priorities and quality of life. This Personal View argues for evidence-based principles to base the development of a UK minimum data set (MDS) for care homes. Co-produced work involving care home staff and older people working with stakeholders is required to define and agree the format, content, structure and operationalisation. Implementation decisions will determine the success of an MDS, impacting aspects including data quality, completeness, and useability. Care home staff who collect the data need to benefit from the MDS and see value in their contribution and residents must derive benefit from data collection and synthesis.
| Item Type: | Article |
|---|---|
| Additional Information: | Funding Information: All authors are researchers funded by the National Institute for Health Research (NIHR)-funded DACHA study (HS&DR NIHR127234). |
| Uncontrolled Keywords: | geriatrics and gerontology,family practice,psychiatry and mental health,health(social science) ,/dk/atira/pure/subjectarea/asjc/2700/2717 |
| Faculty \ School: | Faculty of Medicine and Health Sciences > School of Health Sciences |
| UEA Research Groups: | Faculty of Medicine and Health Sciences > Research Centres > Institute for Volunteering Research Faculty of Medicine and Health Sciences > Research Groups > Dementia & Complexity in Later Life Faculty of Medicine and Health Sciences > Research Centres > Lifespan Health |
| Related URLs: | |
| Depositing User: | LivePure Connector |
| Date Deposited: | 09 Mar 2022 11:30 |
| Last Modified: | 19 Oct 2023 03:14 |
| URI: | https://ueaeprints.uea.ac.uk/id/eprint/83954 |
| DOI: | 10.1016/S2666-7568(22)00010-1 |
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