'I’m Fine!': Assertions of lack of support need among patients with Chronic Obstructive Pulmonary Disease (COPD): a mixed-methods study

Gardener, A. Carole ORCID: https://orcid.org/0000-0002-8064-3780, Moore, Caroline, Farquhar, Morag ORCID: https://orcid.org/0000-0001-7991-7679, Ewing, Gail, Massou, Efthalia and Duschinsky, Robbie (2022) 'I’m Fine!': Assertions of lack of support need among patients with Chronic Obstructive Pulmonary Disease (COPD): a mixed-methods study. Chronic Illness, 18 (3). pp. 574-588. ISSN 1742-3953

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Objectives: To understand how people with Chronic Obstructive Pulmonary Disease (COPD) disavow their support needs and the impact on care. Methods: Two stage mixed-method design. Stage 1 involved sub-analyses of data from a mixed-method population-based longitudinal study exploring the needs of patients with advanced COPD. Using adapted criteria from mental health research, we identified 21 patients who disavowed their needs from the 235 patient cohort. Qualitative interview transcripts and self-report measures were analysed to compare these patients with the remaining cohort. In stage 2 focus groups (n=2) with primary healthcare practitioners (n=9) explored the implications of Stage 1 findings. Results: Patients who disavowed their support needs described non-compliance with symptom management and avoidance of future care planning (qualitative data). Analysis of self-report measures of mental and physical health found this group reported fewer needs than the remaining sample yet wanted more GP contact. The link between risk factors and healthcare professional involvement present in the rest of the sample was missing for these patients. Focus group data suggested practitioners found these patients challenging. Discussion: This study identified patients with COPD who disavow their support needs, but who also desire more GP contact. GPs report finding these patients challenging to engage.

Item Type: Article
Additional Information: Funding: The study was funded by the National Institute for Health Research (NIHR) School for Primary Care Research (project reference 343). The Living with Breathless Study is independent research supported by a Marie Curie research grant (C28845/A14129) and the National Institute for Health Research: Professor Morag Farquhar is funded by a National Institute for Health Research (Career Development Fellowship, CDF-2012–05-218). Dr Robbie Duschinsky is funded by the Wellcome New Investigator Award (Grant Number WT103343MA).
Uncontrolled Keywords: chronic obstructive pulmonary disease, support needs, compliance, help-seeking, disavowal,sdg 3 - good health and well-being ,/dk/atira/pure/sustainabledevelopmentgoals/good_health_and_well_being
Faculty \ School: Faculty of Medicine and Health Sciences > School of Health Sciences
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Depositing User: LivePure Connector
Date Deposited: 24 Feb 2021 00:59
Last Modified: 23 Oct 2022 02:15
URI: https://ueaeprints.uea.ac.uk/id/eprint/79316
DOI: 10.1177/17423953211000386

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