Understanding and reducing refusals of personal care in dementia

Backhouse, Tamara ORCID: https://orcid.org/0000-0001-8194-4174 (2021) Understanding and reducing refusals of personal care in dementia. Nursing and Residential Care, 23 (3). ISSN 1465-9301

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Background: Refusals of assistance with personal care in dementia can be a major source of distress for people living with dementia and their caregivers. Aims: This article examines refusals of care and considers ways of minimising them. Methods: Summary of factors related to refusals of care. Findings: Refusals of care in dementia are common, can occur for many reasons, and can contribute to poor hygiene and caregiver burden. Safeguarding legislation is in place to help guide practitioners and person-centred care can be one way to help reduce and manage refusals. Charities and other organisations suggest multiple ideas to manage refusals. Research evidence for formal interventions is limited, with most evidence for music interventions, bathing modifications and communication techniques. Conclusions: A holistic approach tailored to each person could prevent, reduce or manage refusals of care. Using non-pharmacological interventions and person-centred care, modifying the caregiver approach, adapting to the person’s preferences, minimising the care task, eliminating underlying issues and altering the environment may reduce the likelihood of refusals.

Item Type: Article
Faculty \ School: Faculty of Medicine and Health Sciences > School of Health Sciences
UEA Research Groups: Faculty of Medicine and Health Sciences > Research Groups > Dementia & Complexity in Later Life
Faculty of Medicine and Health Sciences > Research Centres > Lifespan Health
Depositing User: LivePure Connector
Date Deposited: 13 May 2020 23:35
Last Modified: 06 Jun 2024 14:32
URI: https://ueaeprints.uea.ac.uk/id/eprint/75132


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