A brief measure of predeath grief in dementia caregivers:The Caregiver Grief Questionnaire

Cheng, Sheung Tak, Ma, Duan Yang and Lam, Linda C.W. (2019) A brief measure of predeath grief in dementia caregivers:The Caregiver Grief Questionnaire. International Psychogeriatrics, 31 (8). pp. 1099-1107. ISSN 1041-6102

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Abstract

Objective:The study of predeath grief is hampered by measures that are often lengthy and not clearly differentiated from other caregiving outcomes, most notably burden. We aimed to validate a new 11-item Caregiver Grief Questionnaire (CGQ) assessing two dimensions of predeath grief, namely relational deprivation and emotional pain.Design:Cross-sectional survey.Setting:Community and psychogeriatric clinics.Participants:173 Alzheimer (AD) caregivers who cared for relatives with different degrees of severity (63 mild, 60 moderate, and 50 severe).Measurements:Besides the CGQ, measures of caregiver burden and depressive symptoms, and care-recipients' neuropsychiatric symptoms and functional impairment were assessed.Results:Confirmatory factor analysis supported the hypothesized 2-factor over the 1-factor model, and both subscales were only moderately correlated with burden. Two-week test-retest reliabilities were excellent. Caregivers for mild AD reported less grief than those caring for more severe relatives. Z tests revealed significantly different correlational patterns for the two dimensions, with emotional pain more related to global burden and depressive symptoms, and relational deprivation more related to care-recipients' functional impairment. Both dimensions were mildly correlated with neuropsychiatric symptoms (especially disruptive behaviors and psychotic symptoms) of the care-recipient.Conclusions:Results supported the reliability and validity of the two-dimensional measure of predeath grief. As a brief measure, it can be readily added to research instruments to facilitate study of this important phenomenon along with other caregiving outcomes.

Item Type: Article
Additional Information: Issue Theme: Dementia Care
Uncontrolled Keywords: alzheimer's disease,burden,dementia,family caregivers,grief,key words:,clinical psychology,gerontology,geriatrics and gerontology,psychiatry and mental health ,/dk/atira/pure/subjectarea/asjc/3200/3203
Faculty \ School: Faculty of Medicine and Health Sciences > Norwich Medical School
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Depositing User: LivePure Connector
Date Deposited: 31 May 2019 15:32
Last Modified: 07 Jul 2020 23:49
URI: https://ueaeprints.uea.ac.uk/id/eprint/71218
DOI: 10.1017/S1041610219000309

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