Co-research with adults with intellectual disability: A systematic review

di Lorito, Claudio, Birt, Linda, Bosco, Alessandro and Hassiotis, Angela (2018) Co-research with adults with intellectual disability: A systematic review. Journal of Applied Research in Intellectual Disabilities, 31 (5). pp. 669-686. ISSN 1360-2322

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Background: Co-research with people with intellectual disability is a distinct form of patient and public involvement (PPI). This systematic review summarize published studies and protocols to report on the process of co-research in social and healthcare research. Method: Relevant studies were identified using electronic searches on ASSIA, PsycInfo and MedLine. Study quality was assessed, and information relevant to the process of working with co-researchers was extracted and thematically analysed. Results: Thirteen studies were retrieved. Data are reported under three themes: (i) challenges of co-research; (ii) facilitators of co-research; (iii) benefits of co-research. Best practice is presented as a model of co-research. Content analysis on 12 research protocols identified four themes related to PPI. Conclusions: All stakeholders involved in co-research with people with intellectual disability can benefit, providing there is adequate infrastructure to accommodate and empower the co-researchers. Many current intellectual disability research projects still lack systematic involvement of PPI members.

Item Type: Article
Uncontrolled Keywords: co-research,intellectual disability,participatory research,patient and public involvement,systematic review
Faculty \ School: Faculty of Medicine and Health Sciences > School of Health Sciences
UEA Research Groups: Faculty of Medicine and Health Sciences > Research Groups > Dementia & Complexity in Later Life
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Depositing User: Pure Connector
Date Deposited: 20 Dec 2017 06:06
Last Modified: 21 Oct 2022 17:32
DOI: 10.1111/jar.12435


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