Caregiver bereavement outcome: relationship with hospice at home, satisfaction with care, and home death

Grande, Gunn E, Farquhar, Morag C ORCID:, Barclay, Stephen I G and Todd, Chris J (2004) Caregiver bereavement outcome: relationship with hospice at home, satisfaction with care, and home death. Journal of Palliative Care, 20 (2). pp. 69-77. ISSN 0825-8597

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This study used a randomized controlled trial design to investigate the impact of hospice at home (HAH) on caregiver bereavement outcome. Secondary analyses considered the association between bereavement, place of death, and carers' assessment of support. Ninety-six informal carers of patients referred to HAH were surveyed six weeks post-bereavement about the quality of terminal care. Carers next completed measures of their own bereavement response and general health six months post-bereavement. There was no evidence that HAH had an impact on bereavement outcome. In contrast, perceptions of inadequate terminal support and high symptom severity were associated with worse carer bereavement response. However, it remains unclear whether carers' retrospective ratings constitute an accurate account of symptoms and care. Home deaths were associated with both better bereavement response and better physical health post-bereavement than were inpatient deaths. Further research is needed to investigate the implications of death at home for the carer.

Item Type: Article
Uncontrolled Keywords: aged,bereavement,caregivers,consumer behavior,female,follow-up studies,great britain,hospital-based home care services,hospice care,humans,male,middle aged,nonparametric statistics,sdg 12 - responsible consumption and production ,/dk/atira/pure/sustainabledevelopmentgoals/responsible_consumption_and_production
Faculty \ School: Faculty of Medicine and Health Sciences > School of Health Sciences
UEA Research Groups: Faculty of Medicine and Health Sciences > Research Groups > Health Promotion
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Depositing User: Pure Connector
Date Deposited: 27 Oct 2016 10:00
Last Modified: 22 Oct 2022 01:49

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