The framing and fashioning of therapeutic citizenship among people living with HIV taking antiretroviral therapy in Uganda

Russell, Steve, Namukwaya, Stella, Zalwango, Flavia and Seeley, Janet (2016) The framing and fashioning of therapeutic citizenship among people living with HIV taking antiretroviral therapy in Uganda. Qualitative Health Research, 26 (11). pp. 1447-1458. ISSN 1049-7323

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In this article, we examine how people living with HIV (PLWH) were able to reconceptualize or “reframe” their understanding of HIV and enhance their capacity to self-manage the condition. Two in-depth interviews were held with 38 PLWH (20 women, 18 men) selected from three government and nongovernment antiretroviral therapy (ART) delivery sites in Wakiso District, and the narratives analyzed. ART providers played an important role in shaping participants’ HIV self-management processes. Health workers helped PLWH realize that they could control their condition, provided useful concepts and language for emotional coping, and gave advice about practical self-management tasks, although this could not always be put into practice. ART providers in this setting were spaces for the development of a collective identity and a particular form of therapeutic citizenship that encouraged self-management, including adherence to ART. Positive framing institutions are important for many PLWH in resource-limited settings and the success of ART programs.

Item Type: Article
Additional Information: This article is distributed under the terms of the Creative Commons Attribution 3.0 License ( which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (
Uncontrolled Keywords: aids,sub-saharan africa,experiences of illness and disease,coping and adaptation,users’ experiences of health care,self-care,compliance,qualitative research,sdg 3 - good health and well-being ,/dk/atira/pure/sustainabledevelopmentgoals/good_health_and_well_being
Faculty \ School: Faculty of Social Sciences > School of Global Development (formerly School of International Development)
UEA Research Groups: Faculty of Social Sciences > Research Groups > Health and Disease
Depositing User: Pure Connector
Date Deposited: 19 Dec 2015 07:18
Last Modified: 04 Jul 2023 09:16
DOI: 10.1177/1049732315597654


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