Exploring perceptions of psychological services in a children's hospice in the United Kingdom

Wray, Jo, Lindsay, Bruce, Crozier, Kenda ORCID: https://orcid.org/0000-0002-5328-9376, Andrews, Lauren and Leeson, Janet (2013) Exploring perceptions of psychological services in a children's hospice in the United Kingdom. Palliative and Supportive Care, 11 (05). pp. 373-382. ISSN 1478-9515

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Background: The provision of emotional and psychological support for all family members who need it is an essential element of holistic palliative care. Within East Anglia's Children's Hospice, teams of professionally trained and experienced workers offer psychosocial support to all family members at all times during the child's and family's journey. However, the effectiveness and appropriateness of current psychosocial provision is unclear, as is the requirement for any additional psychological services. Objective: The purpose of this study was to elicit perceptions about current psychological support within the hospice from a group of stakeholders (parents, hospice staff, and external professionals). Method: Forty-five parents participated in family focus groups, telephone interviews, individual interviews in their home, or a web-based survey. Ninety-five hospice staff (including nurses, carers, play specialists, therapists, and family support practitioners) and 28 external staff (including physicians, nurses, and commissioning managers) were seen using a mixture of focus group and individual meetings. Focus groups and meetings were held at the hospice building or at an external venue. Interviews were recorded and transcribed verbatim and analyzed using thematic coding. Results: Two main themes addressing perceptions of current psychological provision emerged: “understanding psychological support” and “unmet psychological need.” Subthemes linked to support included choice, staff roles and labels, communication, and flexibility, whereas the themes within unmet need had a stronger focus on people and problems. Significance of results: Understanding different user perspectives is an important first step in enhancing current psychological provision; operationalizing the findings will be challenging.

Item Type: Article
Uncontrolled Keywords: psychological support,children,perceptions,hospice,family support
Faculty \ School:
Faculty of Medicine and Health Sciences > Allied Health Professions (former - to 2013)
UEA Research Groups: Faculty of Medicine and Health Sciences > Research Groups > Community and Family Health (former - to 2017)
Faculty of Medicine and Health Sciences > Research Centres > Lifespan Health
Depositing User: Pure Connector
Date Deposited: 30 Jul 2013 02:23
Last Modified: 19 Oct 2023 01:09
URI: https://ueaeprints.uea.ac.uk/id/eprint/43087
DOI: 10.1017/S1478951512000284

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