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Spencer, Debra, Whiffin, Charlotte Jane and Gracey, Fergus 
ORCID: https://orcid.org/0000-0002-1416-7894
(2025)
A thematic synthesis of parents’/carers’ perspectives regarding the development and content of interventions aimed at supporting children and young people with acquired brain injury and their families.
Disability and Rehabilitation, 48 (14).
pp. 4295-4314.
ISSN 0963-8288
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Abstract
Purpose: This review aims to synthesise published evidence on parents’/carers’ perspectives regarding the development and content of interventions for children and young people (CYP) with acquired brain injury (ABI) and their families. Materials and methods: A systematic review of qualitative and mixed-methods studies was conducted. Searches in MEDLINE, PsycINFO, CINAHL, OpenDissertations, AMED, and Scopus identified studies reporting parents’/carers’ perspectives on ABI interventions. Thematic synthesis was used to analyse findings, and study quality was assessed using the Critical Appraisal Skills Programme (CASP) tool. Results: Thirteen studies were included. Two overarching themes were identified: 1) Feeling supported, highlighting the importance of emotional reassurance, peer connections, and sustained access to support; and 2) Being equipped to navigate the complexities of ABI recovery, highlighting the need for accessible, structured, and culturally responsive interventions to help families navigate ABI recovery. Parents/carers valued flexible, inclusive, and tailored interventions that adapted to their evolving needs. Conclusions: Findings highlight the importance of interventions that provide both emotional and practical support while remaining accessible and responsive to diverse family circumstances. These insights contribute to the development of family-centred rehabilitation programmes that enhance parent/carer wellbeing and engagement in CYP’s recovery.
| Item Type: | Article |
|---|---|
| Uncontrolled Keywords: | acquired brain injury (abi),children and young people,family-centred support,interventions,parents and carers,qualitative research,systematic review,thematic synthesis,rehabilitation ,/dk/atira/pure/subjectarea/asjc/2700/2742 |
| Faculty \ School: | Faculty of Medicine and Health Sciences > Norwich Medical School |
| UEA Research Groups: | Faculty of Medicine and Health Sciences > Research Centres > Mental Health and Social Care (fka Lifespan Health) |
| Related URLs: | |
| Depositing User: | LivePure Connector |
| Date Deposited: | 07 Aug 2026 14:54 |
| Last Modified: | 12 Aug 2026 20:11 |
| URI: | https://ueaeprints.uea.ac.uk/id/eprint/104051 |
| DOI: | 10.1080/09638288.2025.2591692 |
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