Layers of listening: A qualitative analysis of the impact of early intervention services for first-episode psychosis on carers’ experiences

Lavis, Anna, Lester, Helen, Everard, Linda, Freemantle, Nicholas, Amos, Tim, Fowler, David, Hodgekins, Jo, Jones, Peter, Marshall, Max, Sharma, Vimal, Larsen, John, McCrone, Paul, Singh, Swaran, Smith, Jo and Birchwood, Max (2015) Layers of listening: A qualitative analysis of the impact of early intervention services for first-episode psychosis on carers’ experiences. The British Journal of Psychiatry, 207 (2). pp. 135-142. ISSN 1472-1465

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Abstract

Aims: By analysing carers’ accounts of their daily lives and affective challenges during a relative’s FEP against the background of wider research into EIS, this paper explores relationships between carers’ experiences and EIS. Method: Semi-structured longitudinal interviews with 80 carers of young people with FEP treated through English EIS. Results: Our data suggest that EIS successfully aid carers to support their relatives, particularly through the provision of knowledge about psychosis and medications. However, paradoxical ramifications of these user-focused engagements also emerge; they risk leaving carers’ emotions unacknowledged and compounding an existing lack of help-seeking. Conclusions: By focusing on EIS’s engagements with carers, this paper draws attention to an urgent broader question: as a continuing emphasis on care outside the clinic space places family members at the heart of the care of those with severe mental illness, we ask: who can, and should, support carers, and in what ways?

Item Type: Article
Uncontrolled Keywords: sdg 3 - good health and well-being ,/dk/atira/pure/sustainabledevelopmentgoals/good_health_and_well_being
Faculty \ School: Faculty of Medicine and Health Sciences > Norwich Medical School
UEA Research Groups: Faculty of Medicine and Health Sciences > Research Groups > Mental Health
Faculty of Medicine and Health Sciences > Research Centres > Lifespan Health
Depositing User: Pure Connector
Date Deposited: 30 Jan 2015 11:24
Last Modified: 19 Oct 2023 01:25
URI: https://ueaeprints.uea.ac.uk/id/eprint/52058
DOI: 10.1192/bjp.bp.114.146415

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