The transition to living with HIV as a chronic condition in rural Uganda:Working to create order and control when on antiretroviral therapy

Russell, Steve and Seeley, J. (2010) The transition to living with HIV as a chronic condition in rural Uganda:Working to create order and control when on antiretroviral therapy. Social Science and Medicine, 70 (3). pp. 375-382. ISSN 0277-9536

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Abstract

This paper analyses the productive activities of people living with HIV following their uptake of antiretroviral therapy (ART) in rural Uganda. It presents findings from a two-phase qualitative research project carried out in 2005-2006 with a total of 70 participants in an ART delivery programme. The thematic analysis is not focused on the economic effects of ART for individuals and their households per se, but on how their work facilitated an adjustment or 'transition' to living with HIV as a chronic condition. The term transition refers to a person's movement towards incorporating a long-term illness, treatment regimen and its various ramifications into his or her life. This transition is achieved by people taking action and making changes in various aspects of their lives and through reflective and spiritual endeavours. The narratives of work and related activities are interpreted to be adaptive strategies to achieve this transition: 'quests' to regain control, create order and to feel 'normal' again. The paper seeks to build understanding of the transition process to living with HIV as a chronic illness in a rural African setting. It also considers the factors enabling or hindering the transition process in a resource-limited setting, notably circumstances of poverty and vulnerability. Better understanding of this transition process, the adjustment challenges people face and the support needed, is important for the success of ART programmes, because people who adjust are more likely to sustain the management of their chronic condition. © 2009 Elsevier Ltd. All rights reserved.

Item Type: Article
Uncontrolled Keywords: uganda,hiv,antiretroviral therapy,chronic illness,self-management,transition,transformation,livelihood
Faculty \ School: Faculty of Social Sciences > School of International Development
University of East Anglia > Faculty of Social Sciences > Research Groups > Health and Disease
University of East Anglia > Faculty of Social Sciences > Research Groups > Gender
University of East Anglia > Faculty of Social Sciences > Research Groups > Life Course, Migration and Wellbeing
University of East Anglia > Faculty of Science > Research Centres > Water Security Research Centre
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Depositing User: Abigail Dalgleish
Date Deposited: 04 Jan 2011 14:27
Last Modified: 25 Jul 2018 04:14
URI: https://ueaeprints.uea.ac.uk/id/eprint/18651
DOI: 10.1016/j.socscimed.2009.10.039

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